"We cannot afford to wait" - a call to prioritise support for people living with severe mental ill-health

Posted by Dan Steward, Research Assistant at Newcastle University, and the WHOLE-SMI Community Advisory Group and research team, for Mental Health Awareness Week

Fuse colleagues advocating the words of public contributors in mental health research

People living with severe mental ill-health (SMI) often face profound inequalities in both their physical and mental health - and the systems designed to support them are not always equipped to meet their complex needs. That is why we launched WHOLE-SMI (Wellbeing and HOListic health promotion for people with Severe Mental Illness), a programme of research led by Fuse researchers at Newcastle University, focused on understanding how services can better support the whole health of people living with SMI.

Our work set out to answer a vital question: How can we use the resources we already have to do more for those who need it most?

To find out, we engaged with a wide range of voices across the North of England: people with lived experience of SMI, those who commission services, GPs, and frontline staff. We wanted to understand what support is currently available, what the biggest challenges are in accessing it, and how services could be improved. This collaborative approach gave us deep insights into what is working and where real change is urgently needed.

At the heart of our project was a community advisory group made up of individuals with lived experience of SMI. This group worked alongside us from start to finish. They helped shape our questions, guide our focus, and ensure the findings reflected what really matters. Their input was not just advisory - it was transformational.

Together, we identified the most important messages from the research and created clear, compelling headlines to communicate them. We also co-wrote a letter to Prime Minister Sir Keir Starmer, urging the new government to take immediate action. With the recent announcement that NHS England will be abolished, we believe this moment is critical. There is a unique opportunity to rethink how health services work for people with severe mental ill-health, and we must not let it pass us by.

"We need you to be an advocate for those living with poor mental health and be compassionate and vocal in committing to service improvements." 

                                                          Quote from the letter to Prime Minister Sir Keir Starmer

We share our open letter respectfully, but with urgency. Too often, people with SMI are overlooked or underserved. They deserve care that supports all aspects of their health: physical, mental, emotional, and social. We hope this work sparks meaningful dialogue and real change in how services are designed and delivered.

Please read more about the WHOLE-SMI programme and access our findings here.

If you would like to get in touch, please contact Professor Emily Oliver.

Because no one should have to wait for the support they deserve.

Read the full letter below

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