Nourishing our tomorrow needs to start today

Posted by Professor Amelia Lake, Fuse Deputy Director, and Professor of Public Health Nutrition at Teesside University

How do we create a future where every child has access to healthy, affordable food?

That question took centre stage at the British Nutrition Foundation annual conference, which brought together academics, policymakers, and practitioners to tackle one of the most pressing public health challenges of our time: improving the diets of children and young people.

The event was given a special highlight with the attendance of Her Royal Highness The Princess Royal, Patron of the British Nutrition Foundation, who delivered a powerful address on the importance of food in society and education.

Professor Amelia Lake and collegues meeting Her Royal Highness The Princess Royal

Children’s health and children’s diets are hugely important. Yet, rising rates of obesity, food insecurity, and exposure to unhealthy food environments challenge the ability to have affordable and healthy food.

This conference explored both the challenges and solutions, offering evidence-based insights and practical strategies.

I spoke in the morning session alongside my Fuse colleague Professor Greta Defeyter (Northumbria University) and Professor Maria Bryant (University of York). A great representation of Northern University academics!

Profs Maria Bryant, Greta Defeyter, Amelia Lake (L-R) 

Our morning session had a very special guest in the audience, Patron of the British Nutrition Foundation, Her Royal Highness The Princess Royal. Earlier the speakers were invited to meet The Princess Royal and individually talk to her about our work. A good ear for accents, Her Royal Highness. quickly recognised I wasn’t a Teesside native. Those who know me will be aware that I am from Northern Ireland, and I very much sound like I am.

My talk was titled: “Unpacking the Food Environment: Implications for Children and Families” and I discussed Healthy Planning and was able to introduce the audience not just to our academic evidence but also our evidence informed free online training on the topic aimed both at public health and planning teams in local authorities.

I presented our recent ‘Dark Kitchens’ research. The rise of online meal delivery and “dark kitchens” is reshaping how families access food, increasing exposure to calorie-dense options at the click of a button and increasing the availability of accessibility of less-healthy food choices.

While planning allows us to shape our food environment there is much we can do around food retail to create healthier food environments. I discussed some findings from our Fuse Foodscape study funded by the NIHR School for Public Health Research.

We cannot describe the food environment without acknowledging that many households face significant barriers to accessing affordable, healthy food, with direct consequences for children’s health and wellbeing. Food insecurity is real and affects families across the UK. At Teesside, we have worked with communities and organisations using innovative methods to produce healthy food within local social supermarkets such as our healthy ready meal.

Amelia speaking at the event

I called for stronger planning policies and interventions to create healthier food environments, emphasising the importance of collaboration between communities, professionals within local authorities, government and industry.

Improving dietary health isn’t simply about individual choice - it’s about transforming the food environments in which those choices are made.

Her Royal Highness The Princess Royal has been patron of the British Nutrition Foundation since 1988 and delivered a powerful speech at the conference, emphasising the importance of food in society and within education. Her remarks reinforced the British Nutrition Foundation’s mission to ensure every family can access a healthy, sustainable diets.

The conference showcased many impactful speakers and left us with the key message that Nourishing our tomorrow, needs to start today.

The British Nutrition Foundation hosted its annual conference, Nourishing Tomorrow: Equipping Children and Young People for Better Dietary Health in the Future took place on Tuesday 25 November 2025.

Not just what’s on the menu - the hidden forces behind food choice

Posted by Helen Moore, Associate Professor (Research) & Fuse Associate, Teesside University 

On Saturday, I had one of those incredibly energising moments that remind you why you do the work you do. I was invited to present at the Right To Food UK Conference at the University of Westminster. It was a powerful event led by Ian Byrne, Labour MP for Liverpool West Derby. The event represented a crucial moment for shaping policy and driving action to realise the right to food in the UK. The room was full of policymakers, researchers, and advocates, all engaged and working together talking about the issues.

So proud to open the UK’s first national Right To Food conference today. No one should be going hungry in the world’s 6th wealthiest nation - hunger is a political choice & it can be solved, so that’s what we want to do: End hunger. #RightToFood #HungerIsAPoliticalChoice pic.twitter.com/p7IdeoeyQT

— lan Byrne MP (@IanByrneMP) September 13, 2025

Fuse Associate Helen Moore pictured third from the left

The invitation to speak followed my attendance at the launch of the Hungry for Change report by the Child of the North All Party Parliamentary Group (APPG) earlier in July. It’s been a privilege to be part of this journey, co-authoring the Environments chapter with Andrea Burrows, Amelia Lake and Claire O'Malley from Teesside University and Fuse (the Centre for Translational Research in Public Health), and Mark Green and Emma Boyland from the University of Liverpool.

Our chapter of the report looks at how the places and systems around us shape what we eat, often without us even realising it. We looked at everything from fast food outlets to social supermarkets, to advertising, to digital delivery platforms and planning policy. The big takeaway message? Food environments matter. And crucially they’re not the same for everyone.

So, what’s a food environment?

It’s not just about what’s in your fridge. It’s about what’s available in your local shop, what’s advertised to you on billboards and on your phone or computer screen, what your school or work canteen serves, how far you live from a supermarket, and even what your friends and family eat. It’s shaped by everything from planning and transport networks to cultural norms, pricing strategies, and national policies. Have you ever wondered why your local shops have two pizza places but no greengrocer? That’s a food environment in action. It is shaped by planning decisions, business models, and economic pressures, not just personal choice.

And here’s the kicker: these environments aren’t the same for everyone... If you live in a more deprived area, you’re more likely to be surrounded by cheap, high-calorie options, adverts for these types of foods and are less likely to have access to fresh, affordable food. That’s not a personal failing; it’s structural inequality.

What did our chapter of the report say?

Advertising
We explored how advertising aimed at children overwhelmingly promotes unhealthy foods. Even short exposure to adverts for fast food or sugary drinks can increase kids’ energy intake and influence their choices. And children in more deprived households tend to watch more commercial screen media, making them more vulnerable to this kind of marketing.

Community Food Organisations
We also discussed community food organisations, which are an innovative and alternative food relief model to food banks. They exist to try and tackle both food insecurity and food waste simultaneously. They utilise surplus from mainstream food retailers and sell via the usual supermarket format (adding items to a basket and paying at a checkout) but at greatly reduced prices. With lower costs than a traditional supermarket, and less stigmatising than using free emergency food aid, this model shows promise. Some of these organisations operate beyond a supermarket model, and offer additional social support, such as employment training, guidance with benefit claims, or community-building activities, but this differs across organisations. While these differences demonstrate the adaptability of the model, it also makes it difficult to establish a universal definition of community food organisations.

Fast food, screens, and the rise of dark kitchens
One of the most striking findings of our chapter was the increase in fast food outlet accessibility in the North, with an 84% rise in people living within 1km of a fast-food outlet between 2016 and 2025. However, we now must consider that access to food, including fast food, has moved to the digital space. We’re seeing a shift from people going to their local fast-food outlet to order, to using technology on a variety of screens to order food. In a recent piece of work, we found that one business (a delivery only kitchen, also known as a dark kitchen) could appear as eight different restaurant options on a food delivery app. What looks like more options for consumers, means more visibility for businesses, but all the food will be coming from the same place. It’s clever marketing, but it also widens the gap between consumers and the food they’re eating.

So, is this a problem?

I think it is something that needs looking at, particularly as another aspect of this is that planning regulations as they currently stand, (like preventing takeaways from opening near schools) don’t really apply to these virtual kitchens. They can deliver further, run more cheaply, and bypass traditional oversight. It’s a whole new frontier (this digital food environment), and one we urgently need to understand better.

Why does this matter?

At the conference on Saturday, I had the chance to present some of our report findings and speak directly with people who were interested in making changes in this area and improving food access for all. Seeing their genuine interest, being able to answer questions and provide context, was incredibly rewarding. These are the moments that remind me why this work matters, not just in theory, but in practice.

We need to stop thinking of food environments as neutral. They’re shaped by policy, economics, advertising, culture, marketing and technology. Food environments have been shaped and moulded to encourage us to eat less healthy food. The good news is that they can be reshaped. That means investing in healthier options, regulating advertising and marketing, supporting community food initiatives, and making sure digital platforms don’t become the new food deserts and swamps.

Food is more than just fuel. It’s about dignity, culture, and care. And we all deserve a food environment that supports our health and potential no matter where we’re born. To borrow a line from the report’s foreword: “Food insecurity is not about poor choices – it is about a lack of choices.”

Everyone deserves access to good food. Whether you're a policymaker, a researcher, or someone who just wants better options in your community, there’s a role for you in reshaping the food environment.


🔗 Read the full report here - Hungry for Change: Tackling Obesity and Food Insecurity in the North of England

Animating practitioners to take action on stigma

Matty Starforth, Public Health Practitioner-Harm Reduction and Social Inclusion Portfolio, Newcastle City Council

“Stigma, stated simply, is a set of negative and often unfair beliefs. Stigma can be experienced on a societal, structural and personal level. It is employed largely unconsciously but at times also consciously”. 

Anti Stigma Network

Stigma is often a word that is associated with harm but it is important to recognise that stigma can have a huge impact on individuals and groups in society. From my own professional experiences, I am aware, like many of my colleagues and partner services are, that the harms of stigma can include and are associated with inequality, disadvantage, discrimination. Stigma increases stress, shame, depression, isolation, and can lead to the avoidance of healthcare and decreases treatment engagement and retention for individuals and groups.

 

It’s clear that there is a need to address stigma and embed an ‘anti stigma approach’ as part of the work we do to tackle inequalities, but doing so can be challenging. While people tend to be generally aware of the term stigma and how this can affect individuals, there is often less understanding of the depths that people go through to avoid and overcome the stigma they experience, such as not attending appointments or seeking the help or support they deserve. There is also less awareness of the steps that we can all take as individuals to not only avoid stigmatising people through our language and practices, but also actively speak out and promote an anti-stigma approach more widely.

What we are doing about it

To address this, we have had several areas of work in Newcastle upon Tyne looking to raise awareness and address some of the harms of stigma on others. This started with the publication of Drugs, Identity and Stigma and ongoing discussions about changing how we focus on people who use drugs or alcohol and the language we use for those facing multiple disadvantage and exploitation. Academics, policy makers, public health and key stakeholders, from working together on various research, came together to deliver a practitioner conference, improve practitioner training, development and networking and production of a practice briefing, stigma animation and a planned education package. All of this has been informed by lived experience.

In May 2023 we worked with partners to hold a conference to over 320 practitioners, service providers and community members from across the region. The Stigma, Trauma, Substance Use and Domestic Violence Conference involved a range of international, national and regional researchers and academics including a keynote talk from international anti-stigma lead, Professor Carla Treloar. The Conference was designed to promote knowledge exchange and good practice of Anti-Stigma work from across the region. A practice briefing that was developed from the event can be found here. A key theme in the discussions has been around vulnerability and exploitation, and partners have worked together, from research developed by the University, to produce animations around exploitation and home takeover. Research into practice improvement. Two artists were employed to capture the key themes and discussions of the conference as a visual (see below) which could then be shared with services.

Visual capturing the key themes and discussions of the conference

Developing the stigma animation

From this work, we explored how we can explain the ongoing theme of stigma and its impact. A recent project that I have coordinated, in collaboration with university colleagues, is the production of a stigma animation which you can see above. Aimed at practitioners and volunteers, this will help raise awareness and become a key resource to support the work and objectives we have within Newcastle Public health, and also the wider local authority. The animation has involved consultation and input from a range practitioners, service users and individuals with lived experience of stigma. At each stage of the animation production, I have attended the Newcastle Service User and Carer forum. Inclusion of those with lived experience of stigma was essential in these discussions and has been key in helping to shape the direction and design of the animation, particularly in relation to service needs and solutions.

A key challenge during this work has been ensuring we produce an animation which doesn’t unintentionally stereotype or stigmatise individuals through the imagery used. There has been a lot of thought-provoking conversations and discussions which have led to both personal and professional reflections. For example, figures in early storyboard drafts of the animation which were uniformly male and able bodied were subsequently changed to be more inclusive and represent a diverse range of bodies. Throughout the process there have also been a lot of discussion in relation to the language that we use to support the imagery. Some key insight was gained from the Newcastle Service User and Carer forum where participants identified examples of where they had felt stigmatised through language and how potential changes could have changed outcomes. These examples have been included within the animation to highlight the impact of language.

We plan to share the animation across a range of practitioners working within fields such as drug and alcohol, mental health and wider health and social care roles. This will support the drive to encourage sign up to the Anti-stigma network and prompt organisations to develop an anti-stigma strategy for their workplace. Alongside this we wish to support practice improvement by developing a stigma education package, which the academics are leading on, and which we hope to eventually deliver through an educators by experience model.

Addressing stigma will require individual and collective action from all of us, and so we urge you to please watch and share the animation, use the resources available, sign up to the Anti-Stigma Network and help us to spread an anti-stigma approach.

Background and context

Addressing stigma is a key priority in Newcastle upon Tyne. In 2022 the Director of Public Health report stipulated that policy and practice should ensure health improvement is free from stigma. This issue is also gaining National traction, with the Office for Health Improvement and Disparities (OHID) recently announcing the project ADDER stigma indicator programme and currently adapting Professor Carla Treloar’s (University of New South Wales) Australian stigma indicator and monitoring model for the UK. The NHS Alliance Stigma Kills campaign has recently been rolled out, with the North East and North Cumbria Integrated Care System (ICS) backing this campaign for our region. The Anti Stigma Network has also recently formed to raise the profile and awareness of stigma, especially the impact on people who use or have issues with drugs and/alcohol.

Saying farewell to Fuse and celebrating its remarkable women on International Women's Day

Laura Ritson, Programme Manager, NIHR Three Research Schools, Prevention Research Programme, Newcastle University

We are marking International Women's Day by saying thank you and a farewell to Laura Ritson, who helped to establish Fuse in 2008 and has been integral to the Centre's success, while at the same time welcoming new Fuse Manager Agata Robertson.

In this post Laura talks about her journey with Fuse.

Celebrating Fuse's 10th birthday

After an incredible 16-year journey, the realisation that my chapter with Fuse has come to a close feels surreal. I am deeply grateful for the opportunity to have collaborated with an exceptional group of colleagues. Their contributions not only fuelled the growth of Fuse but also played a vital role in my personal development, fostering a continuous journey of learning and growth throughout this period.

Casting my mind back to 2008, I had the privilege of supporting Professor Martin White in spearheading an application to the UK Clinical Research Collaboration (UKCRC) for a Centre for Translational Research in Public Health. This ambitious venture united our five esteemed North East Universities in a unique collaboration dedicated to advancing world-class public health research. Our mission was clear: to enhance health and well-being and combat inequalities. Professors David Hunter, Charlotte Clarke, Janet Shucksmith, and Ann Crosland, among others, joined forces with us in this endeavour. The success of the application was made possible through the invaluable support of policy and practice leaders in Public Health, including Professors Peter Kelly and Eugene Milne. Their ongoing commitment to flying the Fuse flag is truly commendable. The Fuse funding was allocated for infrastructure to build public health capacity in our region. Securing funding alongside four other national centres forged close working relationships that have endured over the years. In 2009, I was delighted to be appointed as the Administrator for Fuse.

Reflecting on the past, our initial funding contract mandated a two-year review due to concerns about the complexity of our collaborative model, one which we passed with flying colours. Fast forward to today, and it's evident that collaborative efforts are now an integral part of our professional landscape. Embracing collaboration with practice partners and the public has been a significant aspect of our growth during my tenure with Fuse. How times have changed, and how exciting it has been to witness and contribute to this transformative evolution.

There have been so many highlights that it’s difficult to know where to start, and impossible to cover them all!

We underwent a lengthy process to identify our name, debating between Fuse and Rede! The communications agenda has grown considerably since we first established Fuse, and we have produced this award-winning blog and our public partner led podcast, and found many other creative ways to share our research supported by Fuse Communications Manager Mark Welford. The Fuse network has expanded to 2000 members, and we now have a dedicated Public Partner network, thanks to the support of Fuse Public Involvement and Engagement Manager Ella Anderson.

Another jewel in the crown has been AskFuse, a rapid response and evaluation service for our policy and practice partners. Special thanks must go to Professor Janet Shucksmith and Rosemary Rushmer, who were integral to establishing the service, and Dr Peter van der Graaf, Lesley Haley, and Annmarie Ruse, who have supported the development and continued to lead the way with a service that has also inspired and influenced the development of other regional and national infrastructures.

Capacity building has been integral to the Fuse endeavour, and it’s been great to see the development of public health leaders of the future. I’ve witnessed Fuse PhD students progress to senior-level careers in local authorities, prestigious NIHR awards, and professorial appointments.

I have been delighted to be part of the founders and planning of the Fuse International Conference on Knowledge Exchange in Public Health, and I am looking forward to connecting with colleagues at Cornell in June for the 6th International Conference.

Receiving the Director's Award from Ashley at the Fuse Awards 2023

I’ve seen many changes over the years, including in directorship to Professor Ashley Adamson. Working with Ashley over the last 10 years has been truly inspirational. A successful woman leader, she has steered Fuse through two renewals of its membership to the NIHR School for Public Health Research (SPHR) and also successfully directed the national School since 2017, with the support of a fantastic directorate team at Newcastle University who I’ve been fortunate to work alongside. I’ve also been inspired by the work of Professors Eileen Kaner, Carolyn Summerbell, Clare Bambra, Susan Carr, Monique Lhussier, and Amelia Lake. All of them challenged and helped me grow in the Administrator role, which expanded considerably between 2008 and 2017, enabling a strong case for a promotion opportunity to Fuse Manager.

In 2018, we moved towards a Fuse sustainability model, transitioning away from research council funding and towards Fuse partner University contributions, one which took time, effort and challenging conversations. Sustainability funding covers core staff costs and non-staff activities, including successful research events that serve as a key opportunity for disseminating our research, engaging in dialogue about implications for policy and practice, making new and strengthening existing contacts, and building a dialogue around research results and potential future projects. These events are a crucial forum for knowledge exchange. There has also been the development of the Physical Activity network and Embedded Researcher network which attract national level engagement.

In 2020, I was an integral part of a Fuse-led application to the NIHR Public Health Interventions Responsive Studies scheme, in which PHIRST Fusion was established. The Fusion initiative takes an evaluability assessment approach to co-producing evaluation design that addresses the priorities of Local Authority stakeholders. Due to my experience with Fuse, I led the communications agenda for PHIRST at a national level and helped secure funding from the Department of Health and Social Care for a dedicated Communications Manager post, which we now host within PHIRST Fusion.

I’ve been dedicated to working with Fuse for a number of years, drawn by; the people, nature, and variety of the Programme Manager role, the difference public health research is making to the population, and the flexibility I’ve had during my career to bring up my children through a combination of part-time and flexible working and during a national pandemic. I was also enthused by the challenge each day brought my way.

I’ve been grateful to Cheryl Wiscombe for supporting Fuse Administration and, more recently, Ann Payne, who has supported me with Fuse’s membership in SPHR. 

I’m thrilled to have transitioned into the role of Programme Manager for the NIHR Three Schools Prevention Research Programme, hosted by the School for Public Health Research, all while pursuing a part-time MSc in strategic leadership. Considering the latter, I had never thought myself capable of undertaking such a commitment. However, thanks to the support and encouragement of close colleagues, I've grown in confidence to seize this opportunity.

I extend my heartfelt gratitude to everyone who has shown dedication to Fuse over the years. I wish Fuse the best of luck for the future under the leadership of the new Director, Professor Sheena Ramsay, and Programme Manager Agata Robertson. I am confident that the coming years will bring both joy and challenges, and I eagerly anticipate following your progress, including the expansion of Fuse into Cumbria and the reinvigoration of the Fuse research clusters.

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Visit the Fuse website to meet new Fuse Manager Agata Robertson, as she tells us about herself, her interest in public health, and what attracted her to working with Fuse.

How can we fail more intelligently?

Posted by Peter van der Graaf, Northumbria University; Amanda Purington Drake, Cornell University; and Ien van de Goor, Tilburg University

We don’t like talking about failures, as it signals loss of time, resources and reputation, but failures present opportunities for learning in knowledge exchange. 

However, this requires a ‘failure culture’ in academia and policy, in which failures are no longer avoided but actively encouraged. To learn how to turn failures into successes, we need to share and publish our failures, have early engagement with all stakeholders in the knowledge exchange process, and make more use of boundary spanners.

There are plenty of academic papers celebrating successes in knowledge exchange, but not many researchers and policy makers talk openly about their failures. But learning from failures is just as important, if not more crucial, than celebrating successes. Allowing partners to reflect in a safe space on knowledge exchange practices and research projects gone wrong, in which communication broke down, partners did not engage or dropped out, and evidence was not taken up or ignored, will provide important lessons on how knowledge exchange practices and research can be improved.

Paul Iske. Chief Failure Officer, speaking at the Fuse conference in 2022  

At the 5th Fuse Conference on Knowledge Exchange in Public Health in 2022, we created such a space in Newcastle by bringing together over 100 academic researchers, policy makers, practitioners, and community members to share and reflect on their failures and how to turn them into success. Don't miss the 6th conference in the US ! 

Our Special Issue: Learning from failures in knowledge exchange published this month in journal Evidence & Policy brings together selected papers from the conference and papers that were submitted in response to an open call afterwards. From 23 original submissions from 14 different countries (including the UK, USA, Canada, Norway, Switzerland, Kenya, Chile, South Korea, and Portugal) and from a range of disciplines and areas of focus (Public Health, Primary Care, Oral Health, Sociology, Anthropology, Public Management, Policy-Making, and Community and Voluntary Sector), we invited four research papers and three practice papers for full submissions.

This includes a paper from Fuse Associate Mandy Cheetham and her practice colleagues on the challenges of co-production. They reflect on the failed performance of a theatre play to mobilise the research findings of a qualitative study into the health and wellbeing effect of major social security reforms (Universal Credit) in the North East of England. They argue that academics fail to appreciate emotional engagement of stakeholders in knowledge exchange.

The point about emotional labour in knowledge exchange and research is further developed (and flipped) by Louise Warwick-Booth, Ruth Cross and James Woodall. They reflect on data generated from three evaluation studies across different Voluntary, Community and Social Enterprise (VCSE) interventions in the North of England. In their paper, they expose the conflict between the research teams and evaluation partners, structured around five key features of co-production to highlight the emotional costs and labour involved for researchers.

The seven papers highlight different ways of defining and conceptualising failures in knowledge exchange, ranging from mis-implementations, to setbacks, pitfalls, unproductive interactions between stakeholders, conflicts in co-production, and deviations from expected and desired results. Using different theories and frameworks, the papers in this special issue demonstrate that failures are complex problems, involving many actors at different levels across various organisations and networks. These organisations and networks are in turn influenced by a range of determinants, from workforce instability, leadership challenges, and lack of adequate funding to practical, everyday issues, such as logistical, technical, and buy-in considerations.

Each paper offers a different perspective on relational barriers and structural stressors contributing to failures, but all authors agree that failures offer opportunities for learning, particularly small failures. We tend to focus on large catastrophic failures, but small failures are often the early warning signs, which can help to avoid larger failure in the future. To support this learning, we need to talk more openly about failures and create a culture where talking about and sharing of failures is more accepted and, even better, actively encouraged. Therefore, we argue for more deliberate experimentation in organisations and partnerships to allow for failures that provide rich insight and learning. How can we fail more intelligently? And how do we create spaces and time for reflection on failures between evidence producers, brokers and users to share this learning and support them in turning failures into successes?


This blog post is based on the article, ‘Learning from failures in knowledge exchange and turning them into successes’, which introduces the Special Issue: ‘Learning from Failures in Knowledge Exchange’. Adapted with thanks to Evidence & Policy.

Authors

Peter van der Graaf is an Associate Professor in Public Health at Northumbria University and Research Manager of AskFuse - the responsive research and evaluation service run by Fuse. Peter is interested in the interface between research, practice and policy making and how this interface facilitates (or hinders) social improvement processes at local, regional, national and international levels. He conducts research on knowledge mobilisation in public health, with a focus on the wider determinants of health (e.g. housing, health landscapes, urban regeneration) and how they affect people’s health and wellbeing.

Amanda Purington Drake, PhD, is the Director of the ACT for Youth Center for Community Action at the Bronfenbrenner Center for Translational Research and a research collaborator with the Social Media Lab, both at Cornell University, USA. Amanda has a passion for using research and evaluation to help communities to promote and support the health and wellbeing of youth. Her work in the Bronfenbrenner Center has focused on promoting positive youth development, investigating non-suicidal self-injury in general populations of adolescents and young adults, and evaluating the effectiveness of large-scale adolescent sexual health initiatives. She has co-developed and evaluated interventions to develop youth social media literacy and to promote parent-teen communication about sexual health. Amanda works to bridge research and evaluation with practice and policymaking to prevent youth risk-behavior and promote healthy development.

Ien van de Goor (MSc, PhD) works as endowed professor and program leader in Public Health and Prevention at Tranzo, Faculty of Social and Behavioral sciences, Tilburg University, in the Netherlands. She has a background in health sciences with many years of research experience in evidence-informed public health. Central areas of interest are healthy behaviour in relation to the environment, poverty and vulnerable groups, and monitoring and public health policy.

The views and opinions expressed by the authors are those of the authors and do not necessarily reflect those of Fuse, the Centre for Translational Research in Public Health.

Getting creative to make research more accessible and inclusive

Posted by Victoria Bartle, Fuse Public Partner

We were throwing balls of wool around, picking picture cards to describe ourselves and having a thoroughly inspiring time. This was not your typical research conference!

It was day one and keynote speaker Pam Burnard was encouraging us to challenge the system using creative methods to subvert common assumptions.

Many of the researchers at the International Creative Research Methods Conference in Manchester are independent, not linked to a specific university or funder and this allows them to approach research from a variety of unusual and unfamiliar angles.

The conference is the brainchild of Dr Helen Kara: independent researcher, author, teacher, speaker and creative research methods (CRM) expert. Helen’s vision was to bring together the global CRM community to share knowledge, promote understanding, enable networking and have fun!

After the first day's keynote, I went to see Nicole Brown, a researcher looking at fibromyalgia, a condition that I also have. She had asked people living with fibromyalgia to collect objects to describe how the condition made them feel. One person had taken a photo of her chair - a really comfortable armchair, with a blanket, a table beside it holding drinks, snacks and distractions. This could have been a picture of my own living room! Due to chronic pain and fatigue I have what I call my 'nest'. I have reclining sofas with a side table with all of my remotes, chargers, creams, spare meds, thermostat, drinks, snacks, book, switch, lip balm (etc.) just so that everything I need is within reach and I don’t have to move too much or cause myself too much pain. I found the picture really impactful and saw the potential for objects, artwork and abstract thinking to be able to describe conditions like fibromyalgia which is extremely difficult to explain to someone who doesn’t have it. Using objects as data to assess and evaluate was really interesting and a methodology that I wasn’t previously aware of.

We were then given the task of picking some cards to describe ourselves as researchers.

These are the lego cards I chose to describe me during the sessions by Nicole Brown, who works with objects as data in research.

The skydiver because I feel like I just ask to do things and hope for the best, the singer because I like to present and talk about PPI (Patient and Public Involvement) in research. 

Black widow because she’s a superhero and fights for people who can’t and Rocket because he’s been made up with tech and I felt like he’s a disabled superhero :)

Jargon buzzing

On day 2 the Lawnmowers Theatre Company, run by and for people with learning difficulties, brought out jargon buzzers which were amazing! The characters pressed the buzzers every time someone used a term or word that they didn’t understand. I really want to use these in PPI meetings in the future, but we might not get anything done having to explain all the acronyms and research language that is often used!

Making a 'zine'

I didn’t know anything about zines and wasn’t aware of the Madzine project to help people with mental health conditions to explain how they feel, get things out and be creative. The session was really interesting giving us some history on zines before we were able to create our own. I made one about a project that I have been working on using some paper with stars on to represent the PPI Group members. A black page for accessibility as we all had different barriers to involvement and some of them were difficult to address, hidden or unknown. Some of the zines that they showed us were amazing: creative, visual, unusual, thought provoking and touching. They plan to create a mobile Madzine library that tours around the country so that people can read the zines and share in the experiences of the creators to increase awareness and understanding of living with mental health conditions.

Board games, rockpools and podcasts  

Kath McGuire (University of Exeter/NIHR School for Public Health Research), led our session talking about working with creative methods, public involvement and research dissemination. I briefly introduced the Fuse podcast and explained the collaborative approach to creating it. People were then able to take a look around the room at the variety of creative outputs that we had brought with us, and a video about how we have creatively communicated research in Fuse (see below). We had a snakes and ladders game to be used with PPI groups, or groups of researchers to evaluate their projects: snakes were barriers and challenges and ladders were successes and wins. We also took posters created by Fuse researchers showing their project results (Emma Adams) and Kath had a Blue Health Rockpool from another project. We took questions and explained how we created the podcast, what its impact had been and answered lots of technical questions about equipment, hosting and distribution. Hopefully accurately!

Attending the conference really broadened my view of research and public involvement. Lots of researchers at the conference felt that by making their work more creative it made it more inclusive. By reducing or removing established barriers to involvement such as language, terminology, education level and academic preconceptions they were able to engage with a wider, more diverse group of people. They could still be academically rigorous and produce research that stands up to peer review and meets publication standards whilst including more people, accessing people with appropriate lived experience of their topic of study and making involvement engaging, interesting and fun!

I have come away from the conference wanting to make Patient and Public Involvement meetings more creative, use games and objects to describe feelings and opinions, implement the jargon buzzer and design engaging dissemination methods that are relevant to the target audience of the study, drawing on the skills of the researchers and PPI teams.

A special thanks to Kath Maguire, Daniel Mutanda and Heather Boult (University of Exeter/NIHR School for Public Health Research), and the Fuse colleagues: Lesley Haley, who helped me with the podcast aspect of the workshop 'market place'; Ella Anderson for preparing the workshop activity; and Mark Welford for producing the Creatively communicating research video that we used in the session.

How to choreograph a dance between policy makers and academic researchers?

Posted by Peter van der Graaf, Associate Professor in Public Health at Northumbria University and AskFuse Research Manager

Dancing is a key move in public health, particularly if you want to make an impact with your research. Knowledge exchange is not just a science or even an art, but very much a dance between researchers and policy makers about the use of research evidence. To complete this dance successfully and get evidence used in decision making, both partners need to follow certain steps. However, learning the steps (science) or performing them perfectly (art) is not sufficient: it requires instinct and feel for where you are in the dance and why you are doing it.

To develop a dance plan for your interactions between policy makers and academic researchers, Fuse hosted a special session (or dance class) at the European Implementation Event in Basel, Switzerland on 8 June. The EIE2023 brought together over 300 implementation scientists, practitioners and funders from across health, social welfare, education and other sectors in Europe. Over two days through fishbowls, science slams, workshops, inspiring keynotes and oral presentations, participants explored how to create a new normal for implementation science in society.

Our session explored dance challenges (e.g. moving too slow, bad timing, outfit malfunctions, and unsynchronised performances) and new routines in response (see: ‘What did we learn?’ below) that we have developed in Fuse over the last 15 years collaboratively with our partners. In the session, we highlighted examples of creative communication (the art of knowledge exchange), research performance both backstage and frontstage (AskFuse), and dancing together (embedded research) to set the scene for a discussion about what makes a successful dance between policy makers, health practitioners and academic researchers. We invited conference participants to share their own reflections of dance routines they have developed to support knowledge exchange and implementation of research evidence in practice and policy making.

What did we learn? 10 dance lessons

Fuse knowledge exchange model

1. Academic researchers need to learn four basic steps for dancing with policy makers (see the Fuse knowledge exchange model):

• Raising awareness, using creative communication.
• Knowledge sharing through joint events.
• Making evidence fit for purpose (localising and tailoring).
• Supporting uptake and implementation (e.g., capacity, co-production, linking activities).

2. A deviant knowledge broker can help to facilitate backstage conversation and protect policy makers and academic researchers from missteps.

3. Go with the music: as the context and process in which evidence is useful changes constantly, it is an important skill for researchers to be able “to go with the music” based on ongoing relationships with policy and practice partners.

4. Emotional engagement between researchers and policy makers is essential to get a better feel for the music. A heart-to-heart or moaning about bad performances helps you to improve dance routines and hide missteps. Don’t forget the power of cookies!

5. Embedded research helps to develop an instinct for the dance, based on a better understanding of each other’s organisational contexts. Embedded research allows you to be part of solutions, developed with the communities affected, not just report on the effect on interventions and their implementations.

6. Public health is political; lobbying and advocacy are a core part of the embedded research roles.

Choreographing your own dance routine

We presented participants with the following questions to help develop their own dance routines: 

In response, conference participants started to develop their own dance metaphors for describing their experiences with collaborative research between academics and policymakers. Someone referred to their routines as a ‘silent disco’, where academics and policymakers were dancing to different pieces of music without knowing what the other where listening too. Other participants emphasised the need to spend time together first before you start picking music, to get a better understanding of each other’s musical tastes (classical meets punk?).

Overall, participants felt inspired to start to think more deeply about their own dance plans. How would you answer the above questions and what would your dance plan look like? 

Full house at the #EIE2023 @fuse_online Special Session! @pvandergraaf75 and Mandy Cheetham choreographing a dance between policymakers and researchers. Creative communication at it’s best! 💃🏽🕺🏼 pic.twitter.com/7ej4Kr29LG

— Leah Bührmann (@LeahBuehrmann) June 8, 2023

The Fuse conference in four Public Partner poems

How to capture the essence of a conference about setbacks, successes and 'brilliant failures' in public health research - an event report, a news story, the results of a survey?  What about in the prose of our public partners who provided their expertise as panellists?  That is what they suggested and here they are.

The 5th Fuse International Conference on Knowledge Exchange in Public Health took place between 15-16 June 2022 in Newcastle upon Tyne.  Find out more about the event, speakers and panellists on the conference website.

..the Fuse experience

PJ Atkinson, public member of Gateshead Poverty Truth Commission

PJ in the centre of a fishbowl conversation

Recently I was Invited to chat with Fuse.

Well it was a Wednesday, had nowt to lose.

They numerify and storify researching for Public Health.

And let me tell you, with very little wealth.

We had main stage speakers, panels, and side room topics, it was never droll, even sat in a fish bowl!!!

We discussed, pyramid breaking, old ideas smashing, and reforming, these people are fun never boring.

But most of all, they turn setbacks into learning, with passion and resolve.

Fuse and its people, want to adapt, grow and evolve.

Knowledge Flow

David Black, Fuse public partner and hospital governor 

(r-l) David and Irene providing their expertise on how to turn setbacks in knowledge exchange into successes

After waiting too long the day came along and it's off to the conference for me.

Knowing where I'm going, despite the traffic slowing, I'm knowing I'll be on time.

Must listen today then whisk my thoughts away to plan what I'll say tomorrow.

A script's what I need after taking heed of the need for brevity.

 

We're off and running, the introductions are made and it's welcome to one and all.

A programme, like life, which can be subject to change.

Reflections on knowledge mobilisation and mistakes.

Evidence of local knowledge exchanged at place.

 

Amid the plethora of parallel sessions and plenary panels.

The exchange of views over coffees and teas.

The paper presentations and interactive poster sessions.

Fishbowls of hot topics and Cabaret of dangerous ideas.

 

A modicum of the local and a smorgasbord of internationalism.

I entered to play at the start of the day, full of eagerness to learn.

To share a thought and to be taught a lesson by all in attendance.

Public health, its impacts and strength of this particular human endeavour.

 

Day two is here and I'm ready, with no fear.

Up on the stage, knowing what to say and trying to keep it brief.

Then before you know it's off, we go and ending with applause all-round.

To have a voice and speak it out, it's a great place to be.

 

Good feedback I'm feeling, plenary speaking's appealing.

Networking and knowledge sharing, I'm doing.

A supportive, safe space, it's a real great place.

For setbacks and solutions to be shared.

 

So, to the end game, the main themes and learning all noted.

My highlight, the brilliant afternoon keynote.

Institute of Brilliant Failures with celebration, laughter, a new way of thinking.

A refreshing concept, informing my future knowledge sharing and learning.

My First Fuse Conference

Margaret Ogden, Patient and Public Involvement (PPI) representative from County Durham

Margaret (right) sharing her experience of the importance of setbacks in knowledge exchange in public health

I went to the Fuse conference in mid June 22

PPI members were invited, I met more than a few

The focus was knowledge exchange, so meaningful to me

In presenting I’d soon see how dynamic I could be

I loved the international element to this annual conference

Diversity was a theme that would get so much reference

Seldom heard communities, always a huge challenge

Dissemination of info too, a challenging thing to manage

Just how effective can knowledge exchange be

With the right expertise, it can be achieved quite easily.


I began my talk with detail of a planned PPI event

That didn’t go well, in spite of the hours which we spent

Planning, collaborating, finding the right venue

But with few attendees present, it can all go askew

We’d do better next time, was our overriding thought

For on that occasion, limited data was caught

I also referred to a further memorable meeting

Where conflict had arisen, it could have been defeating

It was really a clash of people with strong wills

I had to dig deep for new negotiating skills.


As a panel, I felt we made a great team

This experience had totally elevated my self esteem

My first face to face high profile event

At a nearby location, that was heaven sent

My mobility had worsened in the last two years

Confidence had been dented, I now had fears

I needed to get stamina back and level of fitness

I imagine my struggles were hard to witness

But as I move forward with determination and fortitude

I thanked my hosts for the invite which I’d accepted with gratitude

I didn’t make the second day of this interactive event

That had been a real shame, was my only lament.

Knitting out the Knots 

Irene Soulsby, Fuse public member from Gateshead
 

We talked a lot 

Knitting out the knots 

We talked and talked and talked 

A LOT! 

Knitting out the knots 

Comparing designs 

Line by line 

Reknitting stiches  

Holes and lines 

Redesigning our designs 

Comparing setbacks and successes 

Knitting them into things that would impress us  

Learning from each other 

With enthusiasm and sharing 

Creating our new designs.

Many thanks to our public partners for taking the time to write their fantastic poems for this Fuse Open Science Blog. 

If you are interested in joining the Fuse Public Partner Network please visit the dedicated Public Involvement section on our website.

The other third wave: a mass epidemic of very individual pain

Posted by Jack Nicholls, Lecturer in Social Work at Northumbria University

*Content/trigger warning: mental health, depression, suicidal feelings.

This post is a contradiction. It starts with the experience of one person, extrapolates out from that to consider the potential hardships faced by others, and then argues that this extrapolation may be unsafe from a policy and practice perspective. Our topic is the long-term mental health consequences of the pandemic, of lockdown and social restrictions, and of its easing – specifically, those consequences we have not necessarily seen coming, because to those who do not know, they do not seem logical.

Katsushika Hokusai: The Great Wave off Kanagawa

I have knowingly lived alongside depression for nearly two decades. There have been long periods where it has been minimal and manageable, and others where it has nearly destroyed me. Many who experience mental ill health in any form will recognise this undulating pattern, and that the peaks and troughs can have exactly nothing to do with how well life is going objectively. I’ve felt perfectly steady in situations of very high pressure. Conversely, the lowest point of the last few years was at a prestigious conference. I was presenting my work – an opportunity I had been looking for since starting my research – while internally considering whether I wanted to remain alive. I doubt any of the audience would have suspected, because I performed the role of the good presenter. I did what was expected – by them, by me, by the world. More recently, but less severely, I had a short but acute period of utterly disabling depression after submitting my PhD thesis. Something excellent and long-awaited had happened. Celebration was expected, even in lockdown, but I wanted only drawn curtains and my duvet.

During the pandemic, we have had over a year of restriction, upheaval, loss, fear and strain. There has been some discussion of the impact on psychological wellbeing, but nowhere near enough. It has become an afterthought to vaccines and viral containment, which is understandable, and to macro-economics, which may be less so. Alongside we mental illness veterans, hundreds of thousands of people have consciously experienced moderate or severe mental ill health for the first time in their lives.

What particularly concerns me however is the psychological impact of the easing of lockdown. With all its hardship, pandemic restrictions have been our reality. The end of lockdown will represent a change to that reality. It will be accompanied by returning to workplaces, pubs, cinemas, planes, trains and shopping centres.

For some, the change back will be more jarring than they can currently anticipate, even if, like the submission of my thesis, it is on the face of it a ‘good thing’. We are facing a third wave of mental distress. There are those of us who have managed symptoms for years, and those who recognised their genesis in lockdown. There is a strong chance that after the jubilation, many will start noticing that they aren’t feeling how they think they should. They may try to rationalise it – ‘I wasn’t on the frontline, I didn’t lose anybody, I wasn’t furloughed – why the hell do I feel like this?’. If we are not careful, no-one will tell them that this is normal, if awful, and they are entitled to help.

I am unbelievably fortunate. I understand my condition well. I am by-and-large not shamed by it. I have friends, family and colleagues who understand it and me. I have a job with a degree of flexibility. For all of those wonderful protective factors and others, all that privilege of acceptance, the first stage of any episode is still denial, and the second is the instinct to run, hide and dynamite all my bridges. For anyone going through this for the first time, and particularly going through it when they think they should be celebrating like it is VE day, the loneliness, alienation and self-doubt could be pernicious and devastating. It could be fatal. In the context of public policy, planning and rebuilding, and particularly for those who do not want to go back to ‘normal’ but to create a fairer reality, we need to be prepared to offer a pro-active and public response to varied and individual suffering. At the point of both collective relief and collective exhaustion, we need to be ready to be accepting and kind. And we need to do it now.


Below are links to support organisations relating to the issues raised in the post: 

• www.samaritans.org
• Samaritians phone number: 116 123 (for free, 24 hours a day, 365 days a year)
• www.mind.org.uk
• www.mhm.org.uk
• www.thecalmzone.net
• womensmentalhealthnetwork.com
• www.mentalhealth.org.uk/tags/bame
• mindout.org.uk
• www.rethink.org

Link to an interview with Owen Paterson MP, who lost his wife to suicide last year

• www.bbc.co.uk/news/av/health-56751320

Image: Katsushika Hokusai, (CC0 1.0), via Wikimedia Commons

By invitation-only, at a secret location, with no agenda - this is Sci Foo ‘unconferencing’

Amelia Lake, Associate Director of Fuse and Reader in Public Health Nutrition at Teesside University

I’ve been back home from Sci Foo for more than a week. I’m not missing the Californian sunshine as the North East weather has actually been rather seasonal, but I am missing two things; the incredible Google micro-kitchens and the people I had the good fortune to meet.

Before the email arrived - which incidentally, I almost deleted thinking it was another spam invitation to a fictional conference in some far flung location - I hadn’t heard of Sci Foo. Thankfully, I forwarded it to our University Director of Corporate Communications and Public Relations, who was suitably excited.

That was April.  Fast forward to July and I’m on a 10-hour flight to San Francisco (feeling very relieved that I don’t have to entertain the kids on such a long haul). At this point I’m still not that clear what an ‘unconference’ conference is.

When I arrive, I have to download Uber to my phone (not a necessity when living in rural north Yorkshire) and I find my destination with only jet lag to contend with - a theme common throughout my three days at Sci Foo. To be fair, I had jet lag before getting here courtesy of a three-year-old.

On Friday evening, we are bused to the top secret Google X complex and it starts – as all good things should – with food. I can’t remember the last time I went to an event where I didn’t know anyone at all other than some vaguely recognisable faces from the twittersphere.
But with food came conversation. 

Participant-driven 'rugby scrum' 

At around 8pm the conference started (bearing in mind that I had been awake since 3am) and the message was clear. Be inclusive, be kind, be curious and talk to people from as many diverse fields as possible. That was very easy, as I soon discovered, most people were doing or studying things I hadn’t heard of, or had zero comprehension. It was awe inspiring.

I soon discovered that an ‘unconference’ is completely participant-driven and from a distance this looked a bit like a rugby scrum.                                 

       But with encouragement from my new found food friends I joined the pack and put down a session on ‘silencing science’ - discussing whether our role as scientists is to be neutral or advocates. I met Prof Shaun Hendy and Dr Siouxsie Wiles both phenomenal science communicators from the University of Auckland, New Zealand and we devised a session for Saturday morning based on the range of experiences Shaun had collated in his book ‘Silencing Science’.

The rest of the day was incredible – from sessions on trust in science, to the future of scientific publishing – and did I say that the food was great?! Sleep deprivation is nothing when you have access to kettles with higher and lower temperatures depending on the type of tea you select.

On Sunday morning it was my turn to give a ‘lightening talk’ on our Fuse energy drink research, alongside a handful of other presenters. Speakers one and two were incredible with amazing graphics, audio and visuals. My more low-tech approach highlighted the powerful words of our young respondents, illustrating what the consumption of energy drinks means to them.

Sci Foo was only three days but it felt longer, in a good way. There were many highlights, including holding a Woolly Mammoth’s actual tooth during breakfast [add photo], discussing galaxy formations with cosmologist and Prof of Physics Risa Wechsler and attending a session on ‘fully automated luxury feminism’!

There can’t be many conferences – no make that occasions in life - where you can share the same room with the most influential skateboarder in history, Rodney Mullen and a Nobel Laureate.

I hit a conference high attending Sci Foo. It was incredible and lots of people worked very hard to make it such a brilliant event. Particularly Cat Allman, the team from O’Reilly Media, Digital Science, Nature Publishing Group and Google Inc.

My take home message is: if you ever get invited to one of these ‘Foo’ events, say yes - you won’t regret it.


Images:
2: Courtesy of Alex Cagan: https://twitter.com/ATJCagan/status/1149897137640988672
3: Amelia Lake with Prof Shaun Hendy
4: Quotes from the young people involved in Fuse energy drinks research
5: Amelia Lake with a Woolly Mammoth tooth