Let’s kick Coca-Cola out of Christmas for good

Posted by Robin Ireland, Director of Research, Food Active, PhD Candidate, University of Glasgow @robinHEG

You may have thought Coca-Cola invented Christmas. In a sort of way, they did of course. Arguably, modern Santa was designed by an advertising campaign for Coca-Cola in 1933 (Forsyth 2016). And, Santa, whether in the twentieth or twenty-first century, is all about encouraging us to consume. In Coca-Cola’s case, a sweet brown liquid that should logically have absolutely nothing to do with a winter celebration in, originally at least, the Northern Hemisphere.

Coca-Cola has been creative at making up traditions as part of their marketing campaigns since the soft drink was invented in Atlanta, USA, in the late nineteenth century. They have been muscling in on our favourite cultural practices pretty much ever since, in their growth to become a hugely successful and profitable transnational corporation. They have been involved with the Olympics since 1928 when vendors set up branded kiosks in Amsterdam (Keys 2004). A similar relationship with the FIFA World Cup from 1975 was seen as critical at expanding Coca-Cola’s influence into China and the Arab countries (Sugden and Tomlinson 1998).

Coca-Cola expert at manipulating our deepest wishes and our emotions whether they are talking Christmas or football. The pandemic may have prevented their Christmas Truck tour in the UK, but, never fear, their international marketing department is on the case. A two and a half minute commercial on YouTube featuring a little girl and her Dad’s attempts to deliver her letter to Santa at the North Pole had already received over 37 million views at the time of writing, whilst pulling at our heart strings.

Professor Dame Sally Davies, the previous Chief Medical Officer in England, wrote, “Commercial companies use a range of strategies and other approaches to promote products and choices that affect human and environmental health, defined as the commercial determinants of health” (Davies 2019 Annex D, p.4). And Coca-Cola are the masters. Luke Allen (Allen 2020) described the corporation as “virtually a cartoon villain in many public health circles” (p.29). Commercial determinants of health can be divided into four channels in which transnational corporations influence health (Kickbusch et al. 2016). Let’s consider how Coca-Cola use these channels.

The marketing is the most obvious. The red and white Coca-Cola brand is ubiquitous. This year the Christmas Truck Tour will not be visiting Liverpool or Glasgow and other major British cities. But the corporation’s partnership with the Premier League enabled it to tour those city centres in 2019.

This year the Christmas Truck Tour will not be visiting major British cities but the corporation’s 
partnership with the Premier League enabled it to tour those city centres in 2019

How about lobbying then? Marion Nestle (2015) has done a great job in describing how the ‘soda industry’ has learned from the tactics of the tobacco industry in funding dubious research. In funding campaigns and legal challenges to taxes on sugary drinks for example.

As many transnational corporations are criticised for the damage that consumption of their products can cause to human health, so, many try to position themselves as good corporate citizens. Coca-Cola adopt the same tactics and support a number of charities such as FareShare, Street Games, the World Wildlife Fund and Special Olympics GB. It’s sad that in a tough world, it’s often left to corporations to fund good causes rather than government. I thought that had been left in the Victorian age rather than reappearing in the twenty-first century. Coca-Cola also support the Department of Transport’s THINK road safety campaign. In this a volunteer is encouraged to be a Designated Driver to bring intoxicated friends home safely from their Christmas parties. The language of a “responsible drinking culture” is all part of the transnational corporations’ tactics of blaming all of us for believing their marketing and over-consuming their products. That’s right, the soaring levels of overweight and obesity and distressing images of tooth decay amongst youngsters in the UK, are all down to us, the irresponsible parents.

Finally, transnational corporations are experts at developing extensive supply chains to amplify their global ambitions. According to Nestle (2015), Coca-Cola claims to sell its products in two hundred countries with only Cuba and North Korea escaping its clutches. And that’s down to US trade embargoes not to Coca-Cola’s marketing executives.

It’s very hard to argue against Coca-Cola’s Christmas truck tour. Food Active and public health advocates have done so for many years being called the fun police along the way and advocates of the nanny state. We can only speculate the reasons why the tour has been scaled back in the North West in recent years (where Food Active largely operates), but we would take some comfort in the idea that our lobbying played a role in steering the truck off course.

Allen (2020), referenced Coca-Cola’s 2018 annual report, to show the corporation spends approximately US$4 billion per year on advertising. And they wouldn’t be spending that kind of money if the advertising didn’t work. The marketing has persuaded some that Christmas isn’t Christmas without the Coca-Cola Truck Tour. Well, you know the Holidays ARE Coming this year. Because this dreadful pandemic has at least kept some of Coca-Cola’s marketing out of our towns. Let’s just hope that the growing link between obesity and Covid-19 (Alberca et al. 2020) may encourage more to consider how we can limit the advertising of Coca-Cola and other transnational corporations that promote their high in fat, sugar and/or salt products to children. And let’s start to kick Coca-Cola out of Christmas.


References:

Alberca, R.W., Oliveira, L.d.M., Branco, A.C.C.C., Pereira, N.Z. and Sato, M.N. (2020) 'Obesity as a risk factor for COVID-19: an overview', Critical Reviews in Food Science and Nutrition, 1-15, available: http://dx.doi.org/10.1080/10408398.2020.1775546.

Allen, L.N. (2020) 'Commercial Determinants of Global Health' in Kickbusch, I., Ganten, D. and Moeti, M., eds., Handbook of Global Health, Geneva: Springer International.

Davies, S.C. (2019) Time to Solve Childhood Obesity, London, available: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/837907/cmo-special-report-childhood-obesity-october-2019.pdf [accessed 27 November 2020].

Forsyth, M. (2016) 'Coca-Cola didn’t invent Santa ... the 10 biggest Christmas myths debunked', The Guardian, 21 December 2016, available: https://www.theguardian.com/lifeandstyle/2016/dec/21/coca-cola-didnt-invent-santa-the-10-biggest-christmas-myths-debunked [accessed 27 November 2020].

Keys, B. (2004) 'Spreading Peace, Democracy , and Coca-Cola®: Sport and American Cultural Expansion in the 1930s', Diplomatic History, 28(2), 165-196.

Kickbusch, I., Allen, L. and Franz, C. (2016) 'The commercial determinants of health', The Lancet, 4, 895-896.

Nestle, M. (2015) Soda Politics. Taking On Big Soda (And Winning). Oxford: Oxford University Press.

Sugden, J. and Tomlinson, A. (1998) FIFA and the Contest for World Football. Who rules the peoples' game? , Cambridge: Polity Press.

Image 2: Coca-Cola Tour Bus. Liverpool, March 2019. Photo courtesy of E.Boyland.

The views expressed in posts are those of the authors and do not necessarily reflect those of Fuse (the Centre for Translational Research in Public Health) or the author's employer or organisation.

Being part of UC:US

Posted by Maria Thompson, UC:US member, and Ruth Patrick, Lecturer in Social Policy, University of York

Illustration by: www.hatiillustration.com 

In this blog post we hear from Maria, a member of UC:US, a group of people claiming Universal Credit in Belfast working to share experiences of the benefit and to make recommendations for change.

Maria was introduced to Fuse by Ruth Patrick, from the University of York, after an exclusive showing of a new play called 'Credit', described in this accompanying Fuse blog post by Mandy Cheetham.

Maria took part in research with Universal Credit claimants living in Northern Ireland funded by Joseph Rowntree Foundation (JRF)*.

The below is in Maria's own words and has been unedited.


Two years ago, I was made redundant. Due to my postcode I had to claim Universal Credit. This created a massive snowball effect and after two years I am still dealing with the negative consequences. Claiming Universal Credit was the easy bit. I found myself in rent arrears of £1600 and with an old tax credit overpayment of £1400. A week later the eviction letters arrived. Even after explaining my situation, I was faced with third stage eviction letters. I got legal advice from my solicitor as I was already getting divorced and I contacted my MLA (Member of the Legislative Assembly of the Northern Ireland Assembly) for more help.

Listen to Maria's experience of Universal Credit

My MLA asked if I’d be interested to get involved in a research project funded by the Joseph Rowntree Foundation and working with Mark Simpson (Ulster University) and Ruth Patrick (University of York). Mark met with me first, and we talked about my experiences on Universal Credit. Then, we met up as part of a wider group with about 12 people who are on Universal Credit across Belfast. The group met over the course of a year and we decided to name ourselves UC:US.

The purpose of the project was to gather information from different participants’ experience of Universal Credit. We discussed our stories individually.

From day one, nobody had anything positive to say. We all agreed that Universal Credit needed to be drastically improved or scrapped. We worked with an illustrator to show our journeys on universal credit; talking about how the benefit made us feel. We also heard from other experts about their ideas for change to Universal Credits. We put it all together in a leaflet setting out our recommendations for change.

We found that for Universal Credit to be improved, there is a need to:

• Increase the amount paid to avoid people living in poverty
• End the 5 week wait time for a first payment
• Stop the benefit triggering debt 
• Have experienced and trained staff 
• Make Universal Credit user friendly. 

After we concluded our findings, we were delighted to be invited to speak at the House of Lords. We were all excited about a day trip to London and to the Houses of Parliament. This was cancelled due to Coronavirus. We did eventually though get to participate in a meeting virtually at the House of Lords on Universal Credit via Zoom, hosted by Baroness Ruth Lister, and organised by the Social Policy Association. This for our group was very empowering to hear our voices being spoken, listened to and approved by Members of Parliament and the House of Lords.

UC:US hope the government can learn from past mistakes so that Universal Credit can be improved. We want a future where new claimants are not financially scarred or mentally drained from a never ending battle for pennies only to end up owing thousands.

You can find out more about the work of UC:Us at www.ucus.org.uk

* More about the research

As part of research funded by Joseph Rowntree Foundation (JRF), Universal Credit claimants living in Northern Ireland took part in a series of six participatory workshops in 2019. These workshops - which were conceived as 'experts by experience panels' - were a chance for participants to share their experiences and journeys on Universal Credit, and to work together to develop recommendations for change. Importantly, the project adopted a participatory approach; and participants were involved in all the key decisions; including choosing which arts-based output to develop to share key project findings. Participants decided to develop an illustrated flyer; working in partnership with illustrator Hannah Miller. Participants also had the opportunity to hear from people with other forms of expertise about their views about what changes are needed to Universal Credit, and why, and to use that information to inform key decisions about their final recommendations for change. 

 

The project findings have been published by JRF, and participants have since taken part in policy meetings and discussions with Northern Irish politicians and officials, as well as talking at a number of national parliamentary events. The project is now entering a new phase, with funding from the Economic and Social Research Council enabling collaborative work to continue policy discussions between the participants - who call themselves UC:Us - and policymakers and work to create a guide for new claimants of Universal Credit.

“Speaking truth to power is all we can do”

Bringing arts and research together to prompt debate about Universal Credit

Posted by Mandy Cheetham, Research Fellow in the Applied Research Collaboration North East and North Cumbria (ARC NENC), Northumbria University  

As a researcher, it is not every day that you get to work alongside talented artists, actors and writers. I recently had this privilege as part of the planning and development of theatre production Credit. The play was prompted by research commissioned by Gateshead Council, which showed the negative impact of Universal Credit on vulnerable claimants and staff supporting them in North East England. We were grateful to participants who shared their stories so openly and wanted to use the findings to prompt wider debates about welfare reform, beyond published academic papers.

I had limited knowledge of Universal Credit before starting the research in 2017, when community members began voicing their concerns about the roll out. I was shocked by the insights gathered during the fieldwork in 2018. Credit was the culmination of a collaboration with Cap-a-Pie theatre company, who we approached with our ideas. Unfortunately, plans for a theatre production were shelved in April because of the COVID-19 restrictions. The team worked hard to create an online rehearsed reading of part of the play, brilliantly performed by two skilful actors. Supported by a panel of knowledgeable and passionate local and national speakers, we negotiated the challenges of an online post-show discussion. We were unsure how it would go, as we joined by more than 400 people who watched the 40 minute extract from the play. Over 150 stayed for the live Q&A and discussion afterwards, providing thoughtful comments and feedback.

During the panel discussion following the evening performance, the writer, Laura Lindow, commented that she hoped the audience could “hear her own fury in the poetry”, hoping it would “smack everyone around the ears”. The reactions from the Q&A suggest that participants felt similarly moved, describing Credit as: 

“Brilliant, angry, urgent work”

“Extremely powerful and incredibly important”

“I had tears in my eyes watching this”

“Heart breaking, but very realistic. Especially poignant was the reference to starvation”

“The reference to loan sharks took my breath away, eased so gently into lives, but so destructive”

The questions, observations and exchanges with panel members were insightful and engaging. The audience challenged us as researchers to think about how to move beyond the echo chambers of online events to ensure the messages reach those in positions of power to affect change.

As a result of this screening, we have made more connections, with people who have claimed Universal Credit, and academics doing research in related areas. Maria Thompson was one of the people we met following the post-show discussion and you can read about her personal experience of Universal Credit in this accompanying blog post. We also made links with people keen to use the arts to communicate their research findings, engage others in wider debates and challenge us to act: 

“Lyrical, hard hitting, honest writing”

“Beautifully written and acted”

“Speaking truth to power is all we can do and this play was a great example”

“How do we fight negative perceptions of benefit claimants? How do we continue to show the need for a supportive welfare system?”

In the feedback, participants commented on the importance of changing negative stereotypes about claimants. At the end of the evening performance, Patrick Butler, social affairs editor from the Guardian newspaper called on revisions to UC to be made with the input of claimants who have direct experience of the system.

“For me, a decent social security system is a citizen's right. It has to be effective, it has to be humane. I think it has to be an entitlement, not a privilege or reward for good behaviour.”

We’re keen to use the play in different ways to stimulate debate and reflection. Emotions clearly have played a role in galvanising action. We have received requests to use it in staff training and to promote arts/research collaborations. As one participant commented:

“We don’t make best use of art in public health. This is such a moving and poignant play. My hope is that one day we can get it into mandated training in the NHS.”

The diversity of claimant experiences has increased enormously since COVID-19, but the stigma is far from disappearing according to debt charity Turn2Us. Recent reports by the National Audit Office (2020) and the Work and Pensions Select Committee suggest that there is still a long way to go before vulnerable claimants’ rights are protected. Perhaps this is the moment for government to show they have listened to those voices who have long campaigned for meaningful change, to ensure that Universal Credit provides the safety net that people need in times of adversity and to keep the changes to the standard allowance introduced as a result of COVID-19.

If you missed the last performance of Credit, we are planning to show more performances in 2021, so keep an eye out. We are working on a short film with extracts from the rehearsed reading of Credit and interviews with those who support claimants, who were involved in the research, script development and production. This will be available on YouTube in the New Year. We will continue our efforts to raise awareness of this important issue and look forward to working with others keen to do the same.


Acknowledgment

We are grateful to the funders, Newcastle University, Catherine Cookson Foundation and Arts Council Lottery Fund for their support and flexibility.

Images by Lindsay Duncanson

Long Covid’s Advent Calendar of Symptoms

Posted by John Mooney FFPH, Locum Consultant in Public Health, NHS Highland @StandupforPHlth

I should really start this piece with both a declaration of personal interest and a confession. Firstly, I can unfortunately count myself among the many thousands of people affected by what is being referred to as ‘long covid’. Secondly, I have shamelessly borrowed my title analogy from a fellow sufferer and infectious disease academic, Professor Paul Garner whose highly engaging and informative BMJ blogs^(1,2) on the subject have helped many to realise that they are not alone or imagining things. With another prominent ‘patient-advocate’ for the disease being the University of Southampton’s Dr Nisreen Alwan, (associate professor and consultant in public health), you might be forgiven for thinking that this is a virus with a special affinity for public health professionals! Now that would be clever but regrettably it is clearly far less discerning.

Image credit: The Spectator magazine and the illustrator Richard Jolley

In keeping with the spirit of the season, my own advent calendar of symptoms has popped open several new windows this week, most notably ‘pins and needles’ and joint pains. Both have arrived on top of the commonly experienced and more worrying long-term chest pains (eight months in my case) and irregular erratic heart rate (managing over 200bpm at rest on one occasion (the normal range for healthy adults is between 60 and 100 bpm). This combined with a rogue ECG readout (Electrocardiograms test the heart's rhythm and electrical activity) in a local A&E department earned me an unscheduled two-night stay in hospital six weeks ago. Seemingly intractable tinnitus has become another constant ‘companion’.

Resting heart rate over 200 bpm &
 oxygen saturation below optimal 

Thanks to my local NHS Hospital, my symptoms were comprehensively investigated and I continue on the ‘recovery’ journey - if recovery is not too optimistic a label. Recent findings from several studies on the longer term complications of the disease have however made for uncomfortable reading, all the more so for being carried out in people whose symptoms had generally not been particularly severe.

In the first of these, a Frankfurt based cardiac MRI study⁽³⁾ recruited 100 cases of non-hospitalised patients in whom 78% were found to have disruption to heart muscle function and 60% ongoing heart tissue inflammation. Given that the number of ‘milder’ cases will always inevitably far outweigh the numbers hospitalised or who tragically do not survive, the sheer scale of the potential public health disease and premature death burden (if heart health is undermined), begins to look very concerning⁽⁴⁾.

Receiving supplemental oxygen in A&E 6 months after
 initial symptoms (mask displaced to drink)

Perhaps more worrying still, ‘long covid’ does not seem to restrict its attentions to the heart and lungs, with another study finding evidence of multiple organ damage in 201 people with a largely mild course of disease, 70% of whom had damage in one or more organs, including kidneys (12%), liver (10%), pancreas (17%) and spleen (6%), as well as heart (32%) and lungs (33%) four months after initial symptoms⁽⁵⁾. 

Adding further to this complex picture was a news release about a study this week of ten patients at Oxford University in which a novel scanning technique was used to successfully identify damage not picked up by conventional scans⁽⁶⁾. Eight of the ten patients still experiencing shortness of breath three months after infection (none severe enough to be hospitalised), had evidence of hidden lung damage. The new technique will now be repeated with a much larger sample.

These worrying findings about potential long-term damage are already prompting some big-picture questions: What proportion of people who only had very mild disease will go on to develop organ damage? Proportions like 60% and 70% could potentially translate into a staggering public health disease burden with very substantial implications for health services. Devastating though the considerable loss of life has been, the eventual population impact clearly has the potential to be far greater⁽⁴⁾. 

As always with such matters however, it is never especially helpful or productive to dwell too long on ‘worst case scenarios’. For my own part, I am fortunate to be in a non-physically demanding job with an understanding employer. The prospect of accommodating such an unwelcome guest as long covid in a physically strenuous job or on a zero hours contract (or both) does not bear thinking about. Long covid clearly has the potential to further exacerbate the substantial inequalities in health and social outcomes that have so clearly characterised the current pandemic.

Significant unanswered questions also remain around which population groups are most likely to be affected by long covid: do they correspond for instance to those most at risk of not surviving? Early indications are that this might not be the case, at least as far as age or gender is concerned: while there has been no systematic population prevalence study, long covid seems to disproportionately affect younger and middle-aged adults, and females over males. For some this latter observation lends credence to long covid being ‘auto-immune’ in origin since women tend to be at higher risk of such diseases (lupus and rheumatoid arthritis being two prominent examples).

Would vaccination be helpful for those affected? Or might it be dangerous given the likely involvement of a misdirected immune response as the basis for the condition? In these respects it’s extremely encouraging that long covid is receiving high level research attention that seems to be already helping to unravel its impact, causes and effects. Such efforts may ultimately be at least as valuable as the impressive progress with vaccine development.

Returning to the advent calendar of the title, the wonderful thing about advent is that there is a season of joy and festivity at the end of a dark midwinter month. Here’s hoping that there is an end in sight also for the many afflicted by long covid.


References:

1. Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it - The BMJ September 4, 2020. https://blogs.bmj.com/bmj/2020/09/04/paul-garner-on-long-haul-covid-19-dont-try-and-dominate-this-virus-accommodate-it/
2. Paul Garner: Covid-19 and fatigue—a game of snakes and ladders - The BMJ May 19 2020. https://blogs.bmj.com/bmj/2020/05/19/paul-garner-covid-19-and-fatigue-a-game-of-snakes-and-ladders/
3. Puntmann VO, Carerj ML, Wieters I, et al. Outcomes of cardiovascular magnetic resonance imaging in patients recently recovered from coronavirus disease 2019 (COVID-19). JAMA Cardiol. Published online July 27, 2020. doi:10.1001/jamacardio.2020.3557
4. Mooney, JD, Ling J. Long covid: a potential longer term morbidity time bomb?: Rapid response to: BMJ 2020; 371. doi.org/10.1136/bmj.m4470
5. Dennis A, Wamil M, Kapur S, Alberts J, Badley AD. Multi-organ impairment in low-risk individuals with long COVID. https://www.medrxiv.org/content/10.1101/2020.10.14.20212555v1.full.pdf
6. BBC News: Covid-19: Lung damage 'identified' in study: 1st Dec 2020 https://www.bbc.co.uk/news/health-55017301

Acknowledgement to high profile fellow awareness raisers of #LongCovid:

Professor Paul Garner: Liverpool School of Tropical Medicine: @PaulGarnerWoof

Dr Nisreen Alwan: University of Southampton @Dr2NisreenAlwan

Surely men should have their day too...

Posted by Shelina Visram, Senior lecturer in public health, Newcastle University (on behalf of the BoroManCan research team)

*Trigger warning: mental health and suicide

Unless you’re a fan of the comedian and writer Richard Herring, you may not have given much thought to International Men’s Day. For almost a decade Herring has raised huge sums of money for the domestic violence charity Refuge by spending International Women's Day (8 March) answering each person who asks on Twitter 'But when is International Men's Day?' He then follows up the enquiries on International Men’s Day (19 November) to raise money for CALM, the Campaign Against Living Miserably. 

It’s genuinely today. What are you going to be doing? Would you say the problem is that men are only interested in IMD when they think there isn’t one, but don’t want to do anything when it comes around? Genuine question. https://t.co/nAzbGtqBNE

— Richard K Herring (@Herring1967) November 19, 2019

Presumably, these people are under the illusion that there is no dedicated day to celebrate men, yet International Men’s Day was founded in 1999 to do just that. The theme for 2020 is ‘Better health for men and boys’ with the strapline ‘Laugh stronger, live longer’, but many have struggled to find reasons to be cheerful this year. Although women are more likely to suffer the social and economic consequences of the pandemic, being a man greatly increases the risk of death from COVID-19.^(1,2) Men tend to have many underlying health conditions that worsen coronavirus and generally contribute towards lower life expectancy. Our region (North East England) is likely to see high numbers of COVID-related deaths but also significant impacts in terms of poverty and unemployment, given that the North of England’s economy has been hit hardest by the pandemic.⁽³⁾

We don’t yet know what long-term impact the lockdowns will have on mental health and wellbeing, but early reports suggest an increase in suicide. Globally, men were almost twice as likely to die by suicide as women were before the pandemic.⁽⁴⁾ Harmful masculine norms – in other words, what it means to be a man – are a key driver of suicidal tendencies and encourage risk-taking behaviours like drinking and smoking. These norms often stop men from seeking medical help and have a knock-on effect on women’s lives, placing increased responsibilities on them to care for men’s wellbeing.⁽⁵⁾ They also affect women in other ways, for example, there have been reports of a dramatic increase in domestic violence during the pandemic.

Today is #InternationalMensDay, checking in on a mate only takes a few seconds, just a text, or a stupid tweet, or a quick call can make all the difference to a mate who may be going through a hard time. So give it a go! For more information there's Alan... pic.twitter.com/Vcnuxt2j71

— Dave (@davechannel) November 19, 2019

So, not much to celebrate this year then? Well, actually, there is some cause for optimism. Men’s health is starting to move up the agenda in policy and practice. I was involved in an evidence review and expert meeting to inform the first World Health Organization strategy on men’s health and wellbeing in Europe, which was published in 2018. World Health Statistics were separated by sex from 2019 so that we can better understand gender differences that affect health outcomes. There are also a number of initiatives that have adopted gender-sensitive approaches to actively address masculine norms, for example, through rugby or football.^(6,7) In the North East, the BoroManCan campaign aims to inspire positive behavioural, health and culture change in Middlesbrough, where four out of five suicides involve men and the rate of male suicide is the second highest in the country. Various activities have been developed in partnership with community groups, including Barbers for Health, young men’s workshops in schools, and a one-day training course to develop Men’s Health Champions. Many of these activities are on hold because of the pandemic but the BoroManCan website, podcast and social media pages continue to share stories from local men and services, as well as providing advice and links to further support.

To infinity... and beyond!

I’m working with a team from Newcastle, Durham and Teesside Universities to develop a programme of research around men’s health and wellbeing. We were recently awarded funding from the NIHR Applied Research Collaboration (ARC) North East & North Cumbria to conduct research that will help practice partners begin to understand what has worked so far in relation to BoroManCan and where improvements can be made. Findings and outputs will be shared widely so they can be used to inform the development of similar initiatives aimed at addressing gender equality. I’m looking forward to being part of efforts to change the conversation around men’s health and wellbeing, not least because my own little man celebrates his birthday the day after International Men’s Day. Hopefully by the time he’s older the phrase ‘man up’ will mean something quite different, like being comfortable with your emotions and having the confidence to ask for help when you need it. 

References

1. Burki T (2020). The indirect impact of COVID-19 on women. The Lancet Infectious Diseases, 20(8): 904-905.

2. Williamson EJ, Walker AJ, Bhaskaran K et al (2020). Factors associated with COVID-19-related death using OpenSAFELY. Nature, 584: 430–436.

3. Bambra C, Munford L et al (2020). COVID-19 and the Northern Powerhouse, Newcastle-upon-Tyne: Northern Health Science Alliance. https://www.thenhsa.co.uk/app/uploads/2020/11/NP-COVID-REPORT-101120-.pdf.

4. Dearden L (2020). Coronavirus: Mental health incidents rising during UK lockdown, police say. The Independent, 6 April 2020. https://www.independent.co.uk/news/uk/home-news/coronavirus-suicide-rates-ukmental-health-support-a9451086.html.

4. WHO (2014). Preventing suicide: A global imperative. Geneva: World Health Organization.

5. Marcos-Marcos J, Mateos JT, Gasch-Gallén À, Álvarez-Dardet C (2019). Men’s health across the life course: A gender relational (critical) overview. Journal of Gender Studies, epub ahead of print 18 December 2019.

6. Witty K, White A (2011) Tackling men's health: Implementation of a male health service in a rugby stadium setting. Community Practitioner, 84(4): 29-32.

7. Gray CM, Wyke S, Zhang R, et al. (2018) Long-term weight loss following a randomised controlled trial of a weight management programme for men delivered through professional football clubs: The Football Fans in Training follow-up study. Public Health Research, 6(9): 1-14.

Supporting family carers of people living with dementia in a pandemic

Posted by Mark Parkinson, PhD in Health Psychology, Northumbria University

Social coping: offering family carers a lifeline in turbulent times

Despite our enduring efforts to battle COVID-19 and the headlines and attention the pandemic rightly warrants it is important not to lose sight of some of the separate public health issues which not only continue to grow apace in the background but may also be made worse by the social impact of the virus. Among the issues in danger of being overlooked is how the UK will respond to the growing number of people living with dementia which is set to reach one million by 2025.¹

Presently, family carers provide the bulk of care and reliance on family care is becoming even more essential given the lack of formal care available² and the Europe-wide shift away from reliance on formal care and towards ‘ageing in place’/ care in the community.³ However, a key issue is the high level of long-term stress family carers have to endure⁴ as a result of dealing with a combination of financial, social, mental and physical challenges over long periods of time and how this often leads to family care becoming unsustainable with reliance on formal care the only option. Family carers currently face a vicious cycle that threatens to derail family care itself-despite the wishes of carers and carees:

A key question is how this cycle can be avoided. Crucially, it is not the stress that threatens to derail family care, but how well family carers can COPE with stress. A critical coping strategy is carers’ capacity to seek out and receive effective emotional and practical support, particularly at times when they are most in need of it. This kind of coping strategy is called social coping (SC) and has been found to be effective in safeguarding mental health⁵ due to the positive interactions, support and assistance it can deliver.⁶

However, there is a pressing need to better understand what works to promote social coping. This calls for a deeper understanding of what helps or hinders SC and how this knowledge can be applied by providers of formal health and social services, together with the voluntary and charity sectors to promote social coping to make the family care of people living with dementia sustainable.

What we did

Our research, based on work carried out as part of a Fuse sponsored studentship, investigated ‘What works to support family carers of people living with dementia’. Coping⁷ and more specifically social coping⁸ was identified as important to ‘what works’ and this prompted follow-up post-doctoral research to investigate SC further. The findings (so far) can be found in our recently published article⁸ which highlights the need for formal providers to be aware of six key hindrances to family carers’ use of this important coping strategy:

Achieving a better balance between what helps and hinders the adoption of social coping is critical to promoting it and also pivotal to ensuring the long term sustainability of family care of people with dementia. The full report⁸ (briefly outlined here) was presented by the Chairman of Dementia UK to Helen Whately, the Minister for Care at Department of Health & Social Care, on 3 November. This is a work in progress and follow-up is already underway to reveal further insights into social coping theory. For example, how social coping might be used alongside other helpful coping strategies, the pinpointing of carer coping strategies that could be unhelpful in the long term, and the deeper exploration of how providers (health & social care, allied health care services and voluntary organisations) can put social coping into practice, including improving opportunities for carers and carees to socialise.

In the current climate it has never been more important to deepen our knowledge of coping and to separate carer coping strategies which are helpful, and lend themselves to making family care sustainable, from those that are unhelpful. Providing long-term family care for people living with dementia has never been easy, but the arrival of COVID-19 means family carers now need the additional lifeline of improved external support and the right incentives to accept this support⁹ if they are expected to navigate especially turbulent waters.



References

1. Prince, M., Knapp, M., Guerchet, M., McCrone, P., Prina, M., Comas-Herrera, A. & Rehill, A. (2014). Dementia UK: Update Second Edition. Report produced by King’s College London and the London School of Economics for the Alzheimer’s Society. Retrieved from: http://eprints.lse.ac.uk/59437/1/Dementia_UK_Second_edition_-_Overview.pdf 
2. Alzheimer’s Society. (2020). Facts for the media. Retrieved from: https://www.alzheimers.org.uk/about-us/news-and-media/facts-media
3. Glasby, J., & Thomas, S. (2018). Understanding and responding to the needs of the carers of people with dementia in the U.K., U.S. and beyond. Birmingham: University of Birmingham Press.
4. Fonareva, I., & Oken, B. S. (2014). Physiological and functional consequences of caregiving for relatives with dementia. International psychogeriatrics/IPA, 26(5): 725.
5. Norris, F. H., & Stevens, S. P. (2007). Community resilience and the principles of mass trauma intervention. Psychiatry: Interpersonal and Biological Processes, 70(4): 320-328.
6. Lee, C. Y. S., Anderson, J. R., Horowitz, J. L., & August, G. J. (2009). Family income and parenting: The role of parental depression and social support. Family Relations, 58(4): 417-430.
7. Parkinson, M., Carr, S. M., Rushmer, R., & Abley, C. (2016). Investigating what works to support family carers of people with dementia: a rapid realist review. Journal of Public Health. DOI:10.1093/pubmed/fdw100.
8. Parkinson, M., Carr, S.M. & Abley, C. (in press). Facilitating social coping-‘seeking emotional and practical support from others’-as a critical strategy in maintaining the family care of people with dementia. Journal of Health & Social Care, 00:1-12. http://dx.doi.org/10.1111/hsc.13159 
9. Egan, K. (in press). Digital technology, health and wellbeing and the COVID-19 pandemic: it's time to call forward informal carers from the back of the queue. In Seminars in Oncology Nursing. https://doi.org/10.1016/j.soncn.2020.151088

Changing the habit(s) of a lifetime: an intense body and mind affair

Posted by Fiona Ling, Senior Lecturer in Sport & Exercise Psychology, and Gavin Tempest, Senior Lecturer in Exercise Neuropsychology, Northumbria University

Many of us will be soon be thinking about making New Year’s resolutions, whether it’s to do with eating more healthily or doing more exercise. However, how many of us have actually managed to stick to our resolutions even though we know they are good for us? The question is – why is it so difficult to change our health habits?

While it’s well recognised that our environment does not help in encouraging a healthy lifestyle - from food and drink marketing to electronic devices promoting inactivity - could there be other reasons why we find it hard to change behaviour?

"Piled Higher and Deeper" by Jorge Cham www.phdcomics.com

What actually drives our behaviour?

Currently there exists many theories that try to explain why we do what we do, however, explanations are still lacking in regards to how our body and brain works together to directly drive our behaviour. When it comes to changing our habits, a key point to remember is that this involves stopping ourselves from doing things we consider pleasurable. For example, if you’re on a diet, every time you see an unhealthy snack, you have to tell yourself to STOP. Or, if you’re not a fan of exercising, why would you get off the sofa and slip on your running shoes? Making ourselves do things that don’t provide us with an instant reward can be stressful. These examples suggest that changing our habits can be stressful, that is, (the thought of) diet or exercise can become a source of stress (a stressor), and this makes our brain’s impulse control system work harder in order to adopt a new habit. Researchers have found that some of us can become stressed when seeing images of food, and are also not as good at controlling our impulses.¹ Food craving, especially from seeing foods that we like, is a known stressor and the stress experienced from having to control our cravings is likely to tire out the impulse control system that can lead us to give in to temptations.

We might be able to change our habits for a short time as we become vigilant towards our goals, that is, the need to stick to our diet or exercise. However, we all have our limits and if stress from restricting our behaviour continues it will sap our ability to control our impulses, and our behaviour will return to what we are used to (or our ‘normal’). We saw another example of short-term success in behaviour change during our research. When monitoring children’s physical activity, some showed a burst of activity level at the start, but before long, it quickly dropped.² These children were characterised by being hyper-vigilant towards stressors and they were generally more inactive than other children. We speculated that it was our monitoring of the activity that increased stress as the children felt that they had to show us they were more active which might spur on the initial activity spike, but as the children’s impulses for inactivity built up, it resulted in a considerable drop later on.

What’s next - how can we possibly take up, and keep up with, good health habits?

To influence health behaviour, it is crucial to understand the stress-impulse control mechanisms that DIRECTLY drive the behaviour. To use an analogy, if a person has a fractured arm, a direct treatment would be fixing the bone, rather than taking painkillers which would help to relieve the pain but not fix the problem. Similarly, if it is the stress from behaviour change and its influence on impulse control that directly causes us to succumb to temptations, we ought to target psychological interventions that reduce stress, or the brain’s impulse control system. Being able to manage our stress-impulse control system is particularly vital in the current environment where we are constantly exposed to temptations that lead to an unhealthy lifestyle. It is important to note that other factors, such as motivation and intentions, are also influential in changing our behaviour, however, this stress-impulse control process may more directly dictate the way we behave within split seconds and without our conscious awareness.

A possible psychological intervention is mindfulness training which can increase awareness of the stress cues, so that self-control can be executed before the brain’s impulse mechanism takes over. So next time we have a craving for an unhealthy snack or we are getting worked up about going for a run, we can potentially cope by containing and managing stress and impulses.

We believe that more research needs to be invested in the stress-impulse control mechanisms as it can potentially enhance the effectiveness of future individual health behaviour interventions and public health messages in getting us live a healthier lifestyle, and crucially, it can revolutionise the way we think about health behaviour change.


References

1. Spitoni, G.F., Ottaviani, C., Petta, A.M., Zingaretti, P., Aragona, M., Sarnicola, A.,. & Antonucci, G. (2017). Obesity is associated with lack of inhibitory control and impaired heart rate variability reactivity and recovery in response to food stimuli. International Journal of Psychophysiology, 116, 77-84. https://www.sciencedirect.com/science/article/abs/pii/S0167876016307310?via%3Dihub
2. Ling, F.C.M., Masters, R.S.W., & McManus, A.M. (2011). Rehearsal and pedometer reactivity in children. Journal of Clinical Psychology, 67, 261-266. https://onlinelibrary.wiley.com/doi/abs/10.1002/jclp.20745

The views expressed here are those of the authors and do not necessarily reflect those of Fuse (the Centre for Translational Research in Public Health) or the author's employer or organisation.

Summer school at home: Learning online and adapting research to reach the ‘hard to reach’

Posted by Emma Adams, Newcastle University, and Jo Dawes, University College London, NIHR School for Public Health Research (SPHR) Pre-Doctoral Fellows

Starting a new post in a new institution just as a global pandemic and lockdown sweeps the UK is not how we envisaged beginning our NIHR School for Public Health Research (SPHR) fellowships. When our training and development allowance letters came through initial thoughts were to delay booking any training until it was possible to attend in person. However, as time passed, it became clear we may be waiting some time. This realisation coincided with hearing about the “Applied Research Methods with hidden, marginal and excluded populations” course run by Nuffield College, University of Oxford. The course is usually a weeklong residential summer school, but this year it was offered online. The idea of spending five full days sitting at home doing online learning seemed a disappointing second best to a week in Oxford and somewhat limited our enthusiasm. However, these concerns were misplaced. We could not believe how engaging the course was, with tutor Andrea Rossi doing an excellent job of varying the activities, keeping us captivated and packing the course with relevant, interesting, and interactive tasks. 

For this ‘participatory research method’ we were given 5 minutes to create a map of our childhood community, using items we could easily reach. The task was designed as an ‘icebreaker’ activity to start a conversation about our childhoods. Using available objects, rather than drawing, takes away any pressure interviewees might feel about their aptitude for drawing. This activity could be adapted in rural communities using found items outside. Once my map was created, I talked about the map and why I had highlighted specific aspects of my community - this is the point at which ‘data collection’ might start.

Beginning with what makes a population ‘hard to reach’, we were armed with the linguistic tools to define whether our population was hidden, marginal, elusive, rare, excluded, or blurred (see Table 1 for breakdown). By breaking down populations into these different categories, we were better able to understand approaches for reaching and involving them in research. People experiencing homelessness may be perceived as ‘hard to reach’, when in fact they might just be elusive (purposely hiding or not reporting). If we, as researchers, recognise individuals may be making a conscious decision not to report, then perhaps we need to build a foundation of trust. The responsibility a researcher has to find ways to reach the ‘hard to reach’ was one of the most important things that we learned. 

With optimism that the virtual learning might not be as onerous as we had feared, we jumped into three days of research methods (both qualitative and quantitative). Challenging us to approach every technique from both the researcher and participant perspective, we were pulled out of our comfort zones and into creatively mixing research techniques. Opportunities to transform recruitment strategies (such as respondent driven sampling into a data collection tool for analysing social networks were explored. Learning to make the interview experience more interactive challenged our preconceptions of data collection - ever thought about asking a participant to reconstruct an important/memorable place with only items in their kitchen? Having experienced this first-hand, we both agree it was a great facilitation tool as a participant and researcher. The breadth of material in the course left us feeling that it was a week well spent, despite the initial apprehension and sitting at a computer in the blistering summer heat.

As a result of attending this course, we have already adapted how we approach our research activities. Jo was struggling to define a ‘hard to reach’ population in a patient and public involvement (PPI) paper. The course provided real clarity about this topic and helped her confidently address this definition in her writing. Emma was trying to find a way to approach recruitment and the re-shaping and framing of populations has provided me with optimism about my future recruitment strategy.

There is no doubt that by learning online instead of face-to-face, we really missed out on networking opportunities with our course peers - nothing could really replace a good natter over coffee. Conversely, the online nature of the course really opened up the cohort - we were learning with people sitting in their homes in England, Wales, Switzerland, France and Germany, while our tutor taught us from his apartment in Bangkok. Perhaps without being online, we would have been a far less international cohort. After undertaking this excellent course, we certainly feel more positive about online learning, how engaging it can be and how - in these uncertain times - it is important to not simply wait for face-to-face learning to return as the norm. The variety of learning and research activities we used online challenged us to translate so much of what we usually do face-to-face to our ‘virtual classroom’. As a result, we developed skills in how to adapt our current methods of communication in our research.

Our take home messages from the course:

1. Online research and learning can work well if you are creative and willing to be flexible.
2. Researchers must consider reasons some populations are ‘hard to reach' (are they rare, hidden, elusive, marginal, excluded or blurred?).
3. When you recognise WHY a group of people are ‘hard to reach’, you must adapt your research methods to better reach them.
4. Through mixing methods/data sources you can strengthen your understanding of ‘hard to reach’ groups.

Can your education, income or even your job affect your chances of receiving newer cancer treatments?

Posted by Ruth Norris, PhD Researcher, Newcastle University

The way we treat cancer is rapidly changing. We know that individual cancers cause different genetic changes and that new drugs targeting these differences could help improve treatment. This approach is known as precision medicine. In addition, there are treatments using the immune system to attack the cancer, known as immunotherapy. The number of these new treatments have grown hugely over the past few years. In 2018 alone, they accounted for over 90% of the new cancer drugs being developed. These new treatments are also often associated with hefty price tags. For example, immunotherapy as a course of treatment for advanced lung cancer, can cost over £80,000.

Used alongside these new treatments are specific biomarker tests, which help determine if the cancer is likely to respond to these drugs. Doctors use this information to guide decision making so that in theory, the right patients, who will benefit the most from these drugs, receive them. Without biomarker testing it may be impossible to access these drugs or use them appropriately. 

Sounds great, so what’s the catch?

Unfortunately, we know with traditional cancer treatments (surgery, chemotherapy and radiotherapy), that access is not always decided based on the patients’ needs. There are many complex reasons why this might be - and having a lower socio-economic status is one of them. Socio-economic status means your individual or family’s social and economic standing relative to others. It is measured using factors such as income, education and your job. Socio-economic reasons may impact the number of other health conditions a patient has, their ability to request help or even the conversation they have with a doctor. All of which can affect the treatments they receive and the outcomes from therapy. What we don’t know yet is whether the socio-economic differences we see in traditional cancer treatments are also seen with both biomarker testing and the delivery of precision medicines and immunotherapies described above.

Why is this work important?

The NHS was set up on the idea that treatment should be provided to all on the basis of clinical need. We don’t expect that our level of education, the amount of money in our bank accounts or the power associated with our jobs will affect our access to treatment compared to another patient diagnosed with the same cancer at the same stage and with the same prognosis. Yet if these newer treatments can improve cancer outcomes (for example by increasing tumour responses, minimising side effects and improving survival), socio-economic status should not be a factor in determining access. We already know that socio-economic differences are present in cancer survival, but this could be exacerbated if patients with lower socio-economic status are restricted from biomarker testing and access to new therapies, so we need to assess the size of this problem (if any).

What did we do about it?

To investigate this question, we carried out a new systematic review (reviewing the available high quality research evidence) using 58 previous studies showing information on over 1 million patients. Newer cancer drug access was compared between patients with a low to a high socio-economic status. The review looked at 7 cancers, 5 biomarker tests and 11 cancer therapies. The evidence showed that patients with a lower socio-economic status were 17% less likely to receive newer cancer treatments when compared to those patients with a higher socio-economic status. However, the strength of these differences did vary with cancer type, and were clearest in lung cancer. Similar differences were also seen in access to biomarker testing (often seen as a precondition for new cancer drug access).

Can we trust this evidence?

As 42 of the 58 studies were from the USA, more work is needed using UK data to see if similar patterns are observed here. Also, as studies used different measures of socio-economic status (i.e. some income, others education etc.), we need to be careful making conclusions in case the choice of measure used affects the strength of the findings.

What next?

Our review shows that we need more research questioning why factors such as income and education could still be affecting treatment access when clinical decisions should be guided by the patient and tumour genetics. It is important that whilst continuing the important research in developing new precision medicine and immunotherapies, we work to ensure fair access to all patients regardless of socio-economic differences.

Take home points

• Cancer treatment is now guided by genetics and new cancer drugs can help personalise care.
• Having a low socio-economic status can reduce the likelihood of receiving a newer cancer drug and the test linked to your eligibility for the new drug. 
• We need more UK based research to investigate these differences, to ensure fair access and reduce differences in cancer outcomes.

Read the research paper published today: Are there socio-economic inequalities in utilization of predictive biomarker tests and biological and precision therapies for cancer? A systematic review and meta-analysis

Are COVID-19 school guidelines adversely impacting teenagers’ diets?

Posted by Kelly Rose, Graduate Tutor/PhD researcher at Teesside University

As a mum, a registered nutritionist and former schoolteacher, you may imagine where my focus has been in the past few months, during school closures and schools returning. Although, I felt blessed that my girls were home and safe, and we could enjoy time together, with enough food. My daily thoughts did include a darkness, thinking of those teenagers I knew who would not be having a nourishing, happy family life during the lockdown.

In the past two years of my PhD studies, I have discovered that political change, how well policy is implemented and willingness and capacity of headteachers to prioritise healthy food, all have a bearing on how successful school food is provided. In short: school food is a really important factor in the quality of a young person’s diet.

The pandemic is highlighting inequities and raising awareness of school lunches

Over the summer a coalition of organisations formed to tackle food poverty as part of the national food strategy [1,2]. Premier league footballer Marcus Rashford shared his own childhood experiences at the forefront of a campaign calling for free school meals to food insecure children. During the UK lockdown five million families were reported to be experiencing food scarcity, hunger and or issues with accessing enough food, with 3.2 million – that’s 11% of households! – suffering food insecurity.

Parents and young people in the UK have expressed their agreement that healthier diet is more important than ever and would like to see positive change as a result of the pandemic [3,4]. And a significant number of parents want their children to not only learn about nutrition and develop cooking skills in school, but also to have a healthy school lunch [2,3].

Back to school

As my daughter prepared to return to year 11, her school was providing regular updates on the changes they had made in adhering to the COVID-19 guidelines, it was clear that they were working hard to help pupils feel better about returning. Then, a menu came through – oh dear. My heart dropped as I saw three images on the page. A white bacon roll, a white bread sandwich and a pizza slice featured in colour… 

Many children are choosing to take in a packed lunch, but given the evidence over the past decade, the nutritional value may be even more of a concern [5,6]. However, it is also often socially unacceptable to bring in food from home for older teens in years 10 and 11. My school contacts have raised concerns about providing the same food services that they did before COVID, including the logistical challenge of keeping year groups separate in addition to the high levels of hygiene required. This has led some schools to significantly reduce the time that pupils have to eat. These changes may be hampering the ability of schools to serve healthy foods. 

Schools are absolutely an ideal environment to support and shape healthy habits for young people. But, are the expectations for schools to nourish young people, provide comprehensive health education, on top of the academic priorities too much especially in a global pandemic? With the restrictions of the COVID-19 regulations, how can nutrition remain a priority? And what about the existing national school food standards [7].

Is this a national issue?

I want to find out if my experience locally is mirrored nationally. As part of my PhD research I have developed a short questionnaire for students (16-18 year olds), parents of 11-18 year olds, and staff involved in education to complete.

Your help with this important investigation would be very much appreciated. Please complete the survey if you meet the criteria as below, or share with others.

• A young person (aged 16-18 years) attending secondary school or post 16 education in UK
• Parent of a young person (aged 11-18 years) who is attending secondary school or post 16 education in UK 
• Staff employed in a secondary school or post 16 education in UK. 

COMPLETE THE SURVEY HERE



References:

1. National food strategy part 1 – Recommendations in full: https://www.nationalfoodstrategy.org/wp-content/uploads/2020/08/8_NFS_Report_RecommedationsInFull.pdf
2. Sustain website: https://www.sustainweb.org/news/sep20-freeschoolmeals/
3. Covid-19 and Children’s Food: Parents’ Priorities for Building Back Better: https://www.sustainweb.org/resources/files/reports/Childrens_Food_Covid19_Briefing.pdf
4. Bite Back 2030:https://biteback2030.com/sites/default/files/2020-06/BB2030%20Covid-19%20Report%20V2%5B1%5D.pdf 
5. Spence, S., Delve, J., Stamp, E., Matthews, J.N., White, M. and Adamson, A.J., 2013. The impact of food and nutrient-based standards on primary school children’s lunch and total dietary intake: a natural experimental evaluation of government policy in England. PloS one, 8(10), p.e78298.
6. Evans, C.E.L., Greenwood, D.C., Thomas, J.D. and Cade, J.E., 2010. A cross-sectional survey of children's packed lunches in the UK: food-and nutrient-based results. Journal of Epidemiology & Community Health, 64(11), pp.977-983.
7. The Independent School Food Plan website: http://www.schoolfoodplan.com/

Only connect: social survival during lockdown

Posted by Mihirini Sirisena, Research Associate, Newcastle University 

During the time when stringent national lockdown measures were in place, I noticed a new habit I had picked up, whenever I was outdoors. Every time I crossed the road to make way for a fellow runner or a walker, I made an attempt to catch their eye to thank, say hello or at least smile. Smiling or saying hello had gained a new meaning for me. It meant that I established a sense of solidarity and therefore rebutted the slightest chance of offending the other through avoidance by crossing the road. I don’t think I was alone in feeling like this. I crossed paths with many who seemed keen to connect at some level, including one woman who pulled a mask out of her pocket as I approached, covered her mouth and said, “I hope we don’t have to do this for long.” Many would agree that one of most significant challenges brought on by the measures to control the spread of COVID-19 was lockdown, for not only did it curtail our movements, it compelled us to do something that we are incapable of doing as a species - staying away from each other.

Initially, as the news of the epidemic spread, so did the stories of our responses. These stories recorded an array of responses, ranging from stock-piling and racism to altruism, and expressions of fear, suspicion, insecurity in the face of uncertainty and looking for culprits to place blame. As the dust started settling, focus shifted ever so slightly to talking about the mental health costs of lockdown, specifically in relation to social isolation. Alongside this developed a repertoire of how we could stay connected.

One of the first things that appeared on social media when the UK government and mass media began speaking about social distancing was that it is not social but physical distancing that we needed to overcome the epidemic. The message did not become a tagline but in myriad ways, it was clear that we had started to pay heed and show that we are together though apart. We sort alternative ways to maintain connections through digital platforms, despite many of us - including myself - being previously cautious about social media. These are not new but during lockdown we turned to them with vigour, deploying the likes of Zoom, Skype, WhatsApp and Microsoft Teams as platforms to live both our professional and personal lives[1]. Even gaming was pointed out as an effective way of socialising during lockdown and an antidote to social isolation.

Along with the quick assertion of social media as the platform to maintain human connection followed the conviction that these platforms are capable of extending human connection. Movements such as ‘clap for carers’ which were initiated and marketed through social media, stood as evidence of this capacity. In celebrating the success of this capacity to reach and connect, which is largely facilitated through social media itself, we run the risk of creating a one-dimensional discourse or version of social connection during lockdown. For instance, placing emphasis on social media as a means of connecting allows less space to recognise the other creative and meaningful methods some of us turned to, such as letters in the post or checking in at the doorstep.

In addition, a less discussed aspect of social media is its use to brandish intolerance - arguably no different to times before COVID-19 - of those who were seen to have violated ‘lockdown rules’ by driving for exercise or those who were seen to have crossed ‘community boundaries’, however they were defined. Cyclists were a popular target of such diatribes[2]. Similar vindications were abundant when the UK government announced plans to open schools to certain pupils. A narrative that was underlying such vindications appeared to be one that called for the celebration of the nucleus social unit, which took different forms. At times, this unit was understood to be ‘family’ as in instances that called for parents to see the lockdown as an opportunity to connect and spend time with their children. At other times, it was the ‘community’ as in instances where residents wanted to protect their locality from visitors. 

Yet another layer worthy of consideration is the effects of recent developments, such as those that emerged during the second wave of COVID-19 related restrictions, where the public was encouraged to ‘snitch’ on neighbours, if they were thought to be flouting lockdown rules. At one level, these expose our convictions about who we connect with, under what conditions, at what level, in which ways and the modes and the media we resort to, to connect and disconnect. At another, they hint at far reaching implications for what we might come to see or mean by social connections. 

As researchers and practitioners, considering the different ways in which connections were made and maintained will be helpful in our efforts to support and improve collective as well as individual wellbeing. Most importantly, we need to consider the less discussed topic of complex realities of everyday life and how they impact upon the connections that we can and cannot make and, the ways in which they impinge upon our collective and personal wellbeing[3]. 

References:

1. Some suggest the rise in use of social media continues even as lockdown measures have begun to relax: https://thenextweb.com/growth-quarters/2020/07/21/everything-you-need-to-know-about-digital-use-around-the-world-in-july-2020/
2. See also: https://www.thesun.co.uk/news/11547977/cyclists-coronavirus-lockdown-social-distancing/ and https://www.bristolpost.co.uk/news/bristol-news/covidiot-cyclists-stay-home-spike-4083230
3. Particularly, in the period of time that followed the lockdown, popular discourses have begun to highlight ‘social connection’ as one of the positive developments that emerged during the lockdown. Such romantic notions of ‘connection’, which propose that it is 'not money nor fame that a good life needs but to be connected with the others,' tend to undermine the weight socio-economic realities of life have on individual as well as collective wellbeing. For instance, refer to Alain de Botton’s interview with Lauren Laverne on BBC Radio 6 (Aired on 27th August 2020) (https://www.bbc.co.uk/sounds/play/m000lyx0 from 2:08:45, last accessed on 07 September 2020).

Image 2: capture from the BBC news website, 26 April 2020, Coronavirus: Are cyclists being wrongly targeted during lockdown? By Alex Regan (https://www.bbc.co.uk/news/uk-england-derbyshire-52389245)

Catching golden opportunities to create public health evidence as they fly by...

Posted by Dr Helen Walters, NIHR Public Health Consultant Advisor

This week it was announced that a UK collaboration led by Fuse had been awarded prestigious funding to lead a Public Health Intervention Responsive Studies Team (PHIRST), as part of a new national scheme. 

Dr Helen Walters, NIHR Public Health Consultant Advisor

Here Helen Walters introduces the four newly launched public health research teams, contracted under the PHIRST scheme, to enable local authorities to rapidly evaluate interventions aiming to improve health and tackle health inequalities in their areas.

When I was a Director of Public Health in London I knew that my team were delivering innovative schemes that affected large numbers of people. Our hope was that the schemes would improve health and reduce the health inequalities experienced by some highly deprived populations. But we didn’t really know whether they were achieving this.

Did the Healthy Schools programme working across more than 1,500 schools in the capital improve the health of thousands of children? Did the Healthy Workplace award scheme improve sick leave levels for London’s employers? Would getting the Healthy Streets approach into the heart of the Mayor’s Transport Strategy make any difference to physical activity levels in the city?

We were basing these schemes on the little evidence that was available, but we could not find a way to get them evaluated to build that evidence-base any further. Public health practice in local government is mainly distant from academic public health research. Local government does not have a culture of undertaking research. It moves fast, and does not have routes into research funding. Golden opportunities to learn and evaluate were being lost.

The PHIRST Scheme

The NIHR’s Public Health Research programme (PHR) is experimenting with a new scheme to try and solve this conundrum – the PHIRST scheme. PHIRST stands for Public Health Intervention Responsive Studies Teams. The idea is that the PHR contracts with four academic teams who are ready and waiting, fully-funded, to evaluate schemes that are happening in local government across the UK.

The timing could probably not have been worse but somehow, despite pestilence and lockdown, we have managed to appoint four teams, and to match them up with four local authorities that are keen to have their schemes evaluated. Issues include:

• free school breakfast clubs in Hammersmith and Fulham
• citizen-informed design of employment support in Fife - Fuse project in collaboration with Fife Council
• remote provision of drugs and alcohol services in Leeds 
• reducing exposure to adverts for foods that are high in fat, salt and sugar (HFSS) on the transport system in Yorkshire 

The PHIRST teams are led by prominent public health researchers: Ashley Adamson (Newcastle University), Susie Sykes (London South Bank University), Rona Campbell (University of Bristol), and Katherine Brown and Wendy Willis (University of Hertfordshire). They will work closely with each local authority to co-create the evaluation with the heavy lifting being undertaken by the PHIRST teams and fully funded by the NIHR, starting in September.

Timely and accessible research for local authorities

And in a few months the PHR programme will go out to Directors of Public Health and ask for more schemes to evaluate, so we can keep the PHIRST teams busy. If it works the plan is to make this a rolling programme.

Local authorities have huge opportunities to influence health and health inequalities but without an evidence-base they cannot maximise these opportunities. The hope is that this scheme will provide timely and easily accessible evaluations for those who are still hard-pushed Directors of Public Health so that, in the future, there will be an evidence-base.

For further information please visit the NIHR website or email phr@nihr.ac.uk.

The views and opinions expressed in this blog are those of the authors and do not necessarily reflect those of the NIHR, NHS or the Department of Health and Social Care.

Helen Walters' blog was originally published on the NIHR website.